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Sickle Cell Anemia Control Program

Sickle Cell Anemia Control Program. Sickle Cell Anemia. Sickle Cell Anemia is a genetic disorder A major public health problem , mainly seen among tribals Affected are medically underserved & from low socioeconomic class >50% of the world Sickle gene carriers in India

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Sickle Cell Anemia Control Program

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  1. Sickle Cell Anemia Control Program

  2. Sickle Cell Anemia • Sickle Cell Anemia is a genetic disorder • A major public health problem, mainly seen among tribals • Affected are medically underserved & from low socioeconomic class • >50% of the world Sickle gene carriers in India • As per one hypothesis, mainly seen in malaria endemic area • Not a priority program at National level

  3. Public Health importance : If left untreated – • 20% of Sickle disease children die by the age of two year. • 30% of sickle disease children among the tribal community die before they reach adulthood. (ICMR survey-1989 ) • As is genetic in nature, the numbers of diseased people are bound to rise, in absence of suitable interventions.

  4. Problem in other state • Sickle Cell gene in different tribal groups of India - 5 to 34 % • Other state like Maharashtra, Chhattisgarh, Madhya Pradesh, Orissa, Andhra Pradesh, Tamil Nadu also have a problem of Sickle Cell Anemia in Tribal area in variable quantum (As shown in Map)

  5. Sickle Cell Anemia in Gujarat • SCA seen in all 12 tribal districts – all covered under Sickle Cell Anemia Control Program • Tribal Population is the target group • But any person suffering from Sickle Cell Anemia is main beneficiary

  6. Estimated burden of Disease * @ 14.76%

  7. Timeline of Sickle Cell Anemia Control Program - Gujarat • Screening outsourced to qualified, competent & dedicated competitive agencies

  8. Goal No Sickle Cell Disease childbirth by 2020. Prevention of death from Sickle Cell Crisis. To improve health status and quality of life of Sickle Cell Anemia patients.

  9. Component of Program Early diagnosis through • New Born Screening • Prenatal Diagnosis • Antenatal Screening • Adolescent Screening • Mass Screening on mission mode Prevention through • Marriage Counseling • Genetic Counseling • Building Community Awareness

  10. Component Cont….. Reduction in crisis episodes & reduction in mortality through • Supportive treatment • Regular follow up and counseling • Daily Folic Acid supplementation • referral treatment and specialized hospital care • Life saving drug like Hydroxyurea • Pneumococcal vaccination Regular Training and capacity building of • Health care providers & ASHA • Gram Sanjivani Samittee (VHSNC) members & Teachers • Providing program manual

  11. Special Features of the program • Reached up to most vulnerable tribal population • Lifecycle approach. • Regular Counseling at doorstep of patient • Active involvement of NGOs. • Community involvement. • Help of politicians and bureaucrats • Capacity building of both Government and NGO staff • Daily Folic Acid supplementation to all SCD patient • Life saving Hydroxyurea therapy to needy SCD patients

  12. New Initiatives in program • Outsourcing the screening activity • Prophylactic pneumococcal vaccine to all SCD patients- first time in India- 7000 SCD patients covered. • Follow up camps at quarterly interval. • Knowledge Sharing, Technical support by National and International experts (ICMR & SCDIO) • Web based application - for Data collection and online tracing of any SCD patient. • Application of modern techniques and research in the field situations - Stem cell research etc.

  13. Screening before & after outsourcing

  14. Year wise Community screened for Sickle Cell Anemia in Gujarat, Year 2006 to 2013 Before 2012, in this program about 3.5 to 4 lakh population was screened per year, but aftrer outsourcing more than 18 lakh population has been screened.

  15. Sickle Cell Card Normal Sickle Cell Trait Sickle Cell Disease

  16. SCD Follow up Camp Camp at Village Level Screening Camp at Village Level

  17. Need of National Sickle Cell Anemia Control Program • In India- more than 17 Cr of tribals • And thus about 13 lacs Sickle Cell Disease patients • Most of tribal belt in India being an endemic area for Malaria • Different views among the experts in world regarding this disease- need of universal guideline • Integration between different departments of Government sectors and various dedicated NGOs is needed • SCACP- Gujarat has the potential of being taken up as a national program

  18. Visit our website www.gujhealth.gov.in Thanks

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