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Transitioning

PEDIATRIC to ADULT CARE. Transitioning. Insight to: Patient & Family Impact. Family impact. New career path - CEO of Sean’s life. financial stability Be a master planner - coordinating care Assure quality care is constant

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Transitioning

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  1. PEDIATRIC to ADULT CARE Transitioning Insight to: Patient & Family Impact

  2. Family impact • New career path - CEO of Sean’s life financial stability Be a master planner - coordinating care Assure quality care is constant Focus on a continuum of multifaceted succession/transition plans. Learn how to manage “the System” Forced into the world of medicine Maintain sanity & Go with the Flow!

  3. Family Impact • Transitioning is a constant TRIP • Taking • Responsibility • In • Planning

  4. Who is SEAN ?? • Wolf Hirshhorn Syndrome • Physical and Mental Challenges • Non Verbal

  5. Neuro GI Cardio Immunology Urology Renal Ortho ENT Complex Medical Issues • Requires Collaborative Relationships

  6. Open Communication And Relationship Building Is PARAMOUNT

  7. trip Time to take another

  8. Key ComponentsThe obvious • Comfort level • Collaboration • Teach – share info • Treat with respect • DON’T forget to Listen • Concern for Sean and his families needs

  9. The staff is a reflection of you! • Every person is part of transitioning • Office personnel interaction • Staff interaction with Sean • Staff concern to accommodate Sean and the families needs

  10. The big day • Current PCP accompanied us to the appointment • Consult appointment was scheduled at our convenience • Credit to Dr. Kitty O’Hare • Our NEEDS were MET! • Collaboration occurred between PCP’s after transition

  11. Take away Don’t Do’s • Give guidance - Empower • Pediatrician help research available adult PCP • Collaboration with Pedi & adult PCP before and after transition • Adult PCP - hold a “Get to Know Our Practice” • Keep staff informed – have a “primary go to” person • Be accessible • Do not attempt to discuss this at age 18 • Do not divorce abruptly • Do not shop and drop • Do not dismiss any concern • Don’t hesitate to ask the families opinion • Don’t be afraid to form a relationship

  12. Thanks for listening

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