EASAC Science-Policy-Dialogue workshop 20-21 Oct 2011 Lisbon

1. EuropeanScienceAdvisoryNetworkfor Health (EuSANH)ImprovingScienceAdvicefor Health in Europe EASAC Science-Policy-Dialogue workshop 20-21 Oct 2011 Lisbon The EuSANH-ISA project is supported by funding under the Seventh Framework Programme of the European Community under agreement number 229716

2. Science advice for health • (un)solicited analysis of a defined health problem, • based on updated scientific knowledge, • considering expert judgement, practical experience, ethical, cultural and societal values and implications, • conclusions and recommendations for health policy

3. What is EuSANH? • Network of science advisory bodies in Europe active in the field of health. • Promotes independent science advice on health issues to national and European health authorities to support evidence-informed health policy. • Exchange and coordinate work programmes and advisory reports, consultation experts, joint work on advices.

4. EuSANH - history • 2005 - The Hague Invitational meeting with European organisations and EC • 2006-2008 Annual meetings Brussels, Luxembourg, The Hague Methodological aspects; Prevention of NCDs • 2009 – 2011 EuSANH-ISA meetings, Brussels, Warsaw, Madrid Kick-off; policy and thematic analysis; Methodological framework of science advice • October 2011 Bucharest Official launch EuSANH organisation

5. Current EuSANH members

6. EuSANH-ISA partners

7. EuSANH advisory board Permanent • EASAC, ECDC, EFSA, FEAM, IOM, WHO Europe Added for EuSANH-ISA project • SABs from CH, CZ, DE, FI, FR, PT, UK • EUnetHTA, Eur Observatory, LSHTM

8. EuSANH-ISA Improve the quality, effectiveness and efficiency of SA for health across Europe • Current performance • Structured data onorganisations’ advisoryprocesses and practices • Can we do better? • Surveyforpolicy makers and SABs’ staff • Methodologicalframeworkforproducingscienceadvice # • Does itwork? • Illustrationby a firstEuropeanscienceadvisory report • Determinants of a successfulimplementation of population-basedcancerscreening programmes # • How to organise EuSANH? • Communication/cooperation structure for a sustainable network# • Website launched: www.eusanh.eu • Dissemination • Formal launch new EuSANH organisation, Bucharest October 2011 • Workshop at the European Public Health Conference Nov. 2011 • Workshop at EU Polish presidency, ministerial confence Poznan

9. Can we do better? methodological framework for science advice • Framing the issue: Need • Planning the process: Timeliness • Drafting the advisory report: Credibility, Independence, Relevance, Transparency • Formulating the recommendations: Feasibility • Reviewing the report: Quality • Publishing and disseminating the report: Openness • Assessing the impact: Accountability

10. Framing the issue Principle 1: Need • regularly discuss emerging issues • interaction health research community • determine in close cooperation the questions • consider a European or international perspective

11. Planning the process Principle 2: Timeliness • discuss the scope and duration of the task, considering the stage within the policy making process when scientific advice is needed • SAB develops operation procedures to manage the process

12. Drafting the report Principle 3: Credibility • Selection committee members • professional excellence and with an appropriate range of expertise • the diversity of scientific opinions

13. Drafting the report (2) Principle 4: Independence • screen for conflicts of interest • closed meetings to avoid political and special interest influence • responsible and accountable for the final report

14. Drafting the report (3) Principle 5: Relevance • consider adding a policy maker to the committee • consider organising stakeholder hearings

15. Drafting the report (4) Principle 6:Transparency • specify data and data sources • document and explain all assumptions made in interpreting and synthesizing the data • identify and describe all uncertainties • identify where and how expert judgment is applied

16. Formulating the recommendations Principle 7: Feasibility • consider implementation of recommendations • specify ethical or legal principles involved • identify policy options

17. Reviewing the report Principle 8: Quality • guarantee continuity in SARs similar issues • independent peer review • specify the response to the comments • check consistency of report with other SARs of SAB

18. Publishing the report Principle 9: Openness • make publicly available • consider press statements, press releases or press briefings • consider meetings with policy makers and target groups

19. Assessing the impact Principle 10: Accountability • follow-up procedure to monitor the policy makers’ actions in response to SAR • regularly perform a (self)assessment, both of the impact of reports and of performance

21. Does it work? (1)Illustration by a first European SA Purpose case study • Agreeoncommonadvisoryquestion: determinants of successful implementation of population-based cancer screening programmes • Apply ‘best practices’ regarding the methodologicalframework of scienceadvice • Try out newideas to increaseinvolvement of bothpolicy makers and society: • f.i. including a policyadvisororpatientgroups • open debatepossibilities

22. Does it work? (2)Expected outcome • Arrived at concrete recommendations -> statement and checklist (Lynge E et al, Eur J Cancer 2011) • Showed added value by combining experiences of various national organisations into a better product. • Preparing evidence + one day workshop • Evaluating such supra national approach in science advice,-> suitable topic: valuable to consult local experts; evidence based approach appreciated; 2x f2f ;

24. How to organise EuSANH?Towards a sustainable organisation Gradually • Stage 1: (short term) Saving work, a bottom-up approach of collaboration • Stage 2: (mid term) Providing quality assurance • Stage 3: (long term) European recognition, top-down European projects (Each phase will be thoroughly evaluated before a next phase starts)

25. Formal launch EuSANH Bucharest 14 October 2011

26. Membership of the EuSANH network will provide • Access the best experts at a European level (‘Golden network’) • Collaboration when preparing the science base for advisory reports to avoid overlap and duplicate activities and thereby reduce the workload • Valorisation of research in the public domain (e.a. JPI) • One point of contact for the European Commission • Access to the annual EuSANH conference and EuSANH website(members’ work programmes and advisory reports)

27. DisseminationInvitation EuSANH-ISA workshop11 Nov Copenhagen Translating science into policy – illustration of a methodological framework for science advice • Introduction – Role of science advice at a European Level (JPI and EIP) -GR • A common methodological framework of Science Advice • Results of survey policy makers and SAB staff -ISCIII • Steps, principles and guidelines – GR • Two EuSANH science advice studies • Determinants for a successful implementation of cancer screening programmes -SBU • Childhood leukemia - SHC • Panel discussion on collaboration between SABs on national/European level • Bernardo Delogu (EC), Kevin McCarthy (EC) -> valorisation in the public health field • Finn Borlum Kristensen (EUnetHTA) -> experiences European organisations, • Carlos Segovia (ISCIII),-> connection with JPIs • Susanne Allander (SBU) -> example of relationship SA with policy makers,

28. To get involved • EuSANH secretariat eusanh@eusanh.eu • EuSANH webpage: http://www.eusanh.eu

29. Thank you for your attention

30. Extra

31. Overlapping topics 2011 • Vaccination: • Influenza • National vaccination programmes • Mental health and psychosocial factors: • psychotropic medicine • Psychosis/schizophrenia, depression • Autism spectrum disorders • Violence against children • HTA • Dental health • Environmental health • Childhood leukemia-> collaborative project BE/NL