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Indiana Mental Health and Addiction Transformation Work Group

Consumer / Family Involvement Subcommittee Members. Kim Williams [(Chair) Families Reaching for Rainbows, Inc.]Rosie Carney (DMHA Lead Staff Member)Ruth Summers (ACES)Ronda Ames (KEY Consumer Organization)Gilberto Perez (Northeastern Center, Ligonier, IN)Kellie Meyer (NAMI)Bob Postlethwait (R

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Indiana Mental Health and Addiction Transformation Work Group

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    1. Indiana Mental Health and Addiction Transformation Work Group Consumer / Family Involvement Subcommittee Group

    2. Consumer / Family Involvement Subcommittee Members Kim Williams [(Chair) Families Reaching for Rainbows, Inc.] Rosie Carney (DMHA Lead Staff Member) Ruth Summers (ACES) Ronda Ames (KEY Consumer Organization) Gilberto Perez (Northeastern Center, Ligonier, IN) Kellie Meyer (NAMI) Bob Postlethwait (Rainbows/DMHA/NAMI) Susan Pieples (Indiana Autism Society/NAMI) Catherine Hardy Hansen Linda Driggs (STARR Parents/Member of Frankfort, IN Wraparound Board) Phyllis Metzelaar (FSSA Project Manager for Transformation Workgroup) Sue Lummus (DMHA) Ann McCranie (TWG Research Study)

    3. Indiana Mental Health and Addiction Transformation Work Group: Consumer / Family Involvement Subcommittee

    4. Indiana Mental Health and Addiction Transformation Work Group: Consumer / Family Involvement Subcommittee

    5. Characteristics of Full-Partnership of Families/Consumers The following is a working draft of what the subcommittee envisions true and full partnerships will entail: Have/create a measure of when the following standards have been addressed and completed; Establish if all partners are treated equally; Compensation is equal to compensation of time given; All parties receive adequate time to review written materials in preparation for meetings; Appropriate support for financial issues incurred, including missed wages, out-of-pocket expenses, such as transportation/mileage, hotel, meals, etc. Additionally many caregivers face the expense of childcare – this hugely affects their ability to participate; Tokenism – Are there enough individuals representing consumers and families that individuals feel free to speak up? To feel safe in the group there must be more than one individual. Sustaining family involvement – Once engaged, how to keep involved – Is there a sprit of collaboration? Are there defined goals and is the group making real progress towards goals?

    6. Some suggestions of next steps: Create a uniform policy of supporting needs identified by consumers/family members to support their ability to become actively involved in working as partners to the systems that are asking for their assistance. Make sure that the consumer understands the purpose of the group in which they are to participate represents and their mission or reason for the need of their involvement. Clearly define what expectations are from participating in collaborating in the group to the consumer that is being asked to participate.

    7. Some areas in which we recommend family partners be included: Full partners in the treatment planning process as service recipients (consumer and family driven treatment) Full partners in state and local policy and planning meetings Full partners in service delivery by way of using the consumer/family experiential expertise in providing peer to peer support services to all three populations- children with SED, adults with SMI and both with CA.  These should be opportunities to provide this support both in the hospitals and in the community ( and DOC).

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