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EuroPa Plenary Meeting -Paris -

EuroPa Plenary Meeting -Paris - . Agenda EuroPa Plenary Meeting, Paris. 9:00 - 9:15 Meeting objectives / project status (W. Oertel) 9:15 - 9:30 Technological Implementation Plan (R. Wick) 9.30 -11:00 Discussion of EuroPa’s future (W. Oertel) 10:00 - 10:15 COFFEE BREAK

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EuroPa Plenary Meeting -Paris -

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  1. EuroPa Plenary Meeting-Paris -

  2. Agenda EuroPa Plenary Meeting, Paris 9:00 - 9:15 Meeting objectives / project status (W. Oertel) 9:15 - 9:30 Technological Implementation Plan (R. Wick) 9.30 -11:00 Discussion of EuroPa’s future (W. Oertel) 10:00 - 10:15 COFFEE BREAK Deliverables, results and their exploitation of 11:00 Work Package 3 – Patient registry (W. Poewe) Deliverables, results and their exploitation of 11:30 Work Package 4 – CREO (O. Rascol) 12:00 Work Package 5 – Health economics study (R. Dodel) EuroPa Plenary Meeting Paris

  3. Agenda EuroPa Plenary Meeting, Paris • 12:30 – 13:15 LUNCH BREAK • 13:15 Work Package 2 – Data management (M. Stoll) • 13:35 Work Package 1 – Network management (R. Wick) • 13:50 Discussion of the EuroPa Publication Policy (W. Oertel) • 14:15 Work Package 6 – Fundraising (E. Tolosa) • 14:45 Summary of project results and their further use (W. Oertel) EuroPa Plenary Meeting Paris

  4. Meeting Objectives • Agreement on the project results and achievements and how they could be further used (in preparation of the TIP) • Discussion of remaining deliverables required in order to secure final payments We should in particular discuss: • Analysis of the patient registry data • Protocol, preparation and conduct of the epidemiological study • Status of the EuroPa health economics study (WP 5) • EuroPa publication policy • Further use and development of the patient registry • Continuation of the EuroPa network and its further funding EuroPa Plenary Meeting Paris

  5. Project status • Patient registry with about 1.700 entries • Clinical Research Executive Organization defined and working (CREO) • Protocol of the epidemiological study • Health economics study is ongoing • Funding period ends in less than 3 months (extension by 2 months possible) EuroPa Plenary Meeting Paris

  6. Remaining deliverables • Final reports (for each WP and the entire project) • Technological Implementation Plan • Constitution & Bylaws and Publication Policy • Manual describing procedures necessary for conducting a RCT • Study protocol of the example RCT • Electronic case report form of the RCT • Report of cost-of-care analysis • Model of the health care utilization in the course of PD • Sustainable funding strategy for EuroPa EuroPa Plenary Meeting Paris

  7. Remaining Milestones • Establishment of EuroPa as an independent and fully functioning organization (month 36) • Inclusion of 4000 patients (month 36) – (currently approx. 1700) • Designed RCT (month 30) • Prepared application for external funding (month 36) • Statement cost of care and quality of life of PD patients in Europe (month 24) • Decision analytic model to assist health care decisions for PD (month 36) • Completion of the funding survey (month 30) • Presentation and commencement of implementation of a business plan for EuroPa (month 33) EuroPa Plenary Meeting Paris

  8. Future • Main project objective: • Establishment of an infrastructure for an independent European network for clinical research on Parkinson’s disease • Main question: • Is this objective still feasible and desired and how could we proceed? EuroPa Plenary Meeting Paris

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