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CPF Resources. Resources for IPF Patients. Creation of “IPF Support Group Coordinator’s Kit” for local patient groups Patient support groups: San Francisco, CA Philadelphia, PA Vincennes, IN Fort Myers, FL Seattle, WA Eugene, OR. Resources for IPF Patients.
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Resources for IPF Patients • Creation of “IPF Support Group Coordinator’s Kit” for local patient groups • Patient support groups: • San Francisco, CA • Philadelphia, PA • Vincennes, IN • Fort Myers, FL • Seattle, WA • Eugene, OR
Resources for IPF Patients • The Breathing Disorders SourcebookBy Francis V. Adams, MDLowell House, November 1998 • Shortness of Breath: A Guide to Better Living and BreathingBy Andrew L. Ries, et al Mosby-Year Book, Inc., September 2000 • The Lung Transplantation HandbookBy Karen A. CoutureTrafford Publishing, 2001
Resources for IPF Patients • Coalition for Pulmonary Fibrosis (www.coalitionforpf.org) • American Thoracic Society (www.thoracic.org) • American College of CHEST Physicians (www.chestnet.org) • American Lung Association (www.lungusa.org) • Food & Drug Administration (www.fda.gov) • Breatin’ Easy (www.oxygen4travel.com)
Resources for IPF Patients • NIH (www.nih.gov) • Duke University (www.fpf.duke.edu) • Caregiving.com • Pulmonary Fibrosis Association (www.pulmonaryfibrosisassn.com) • Pulmonary Paper (www.pulmonarypaper.org) • American Hospice and Palliative Care Organization (www.nhpo.org)
Resources for IPF Patients Online Discussions: Chronic Lung Disease Forum www.cheshiremed.com/programs/pulrehab/forum/cldforum.html Huff ‘n’ Puff Online Forum http://members.tripod.com/triton2/
1685 Branham Lane, Suite 227, San Jose, CA 95118 888.222.8541 info@coalitionforpf.org