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This comprehensive document explores the significant role of Patient-Reported Outcome Measures (PROMs) in enhancing healthcare sustainability. PROMs, such as quality of life assessments and symptom severity evaluations, provide valuable insights from the patient's perspective, aiding in monitoring illness impact, treatment effectiveness, and care quality. The text delves into PROMs definitions, their generic versus condition-specific applications, and routine collection projects across various Canadian regions, emphasizing their contribution to sustainable healthcare practices. Additionally, it discusses sustainability issues in healthcare, highlighting the sources of waste and the importance of transitioning from "business as usual" to sustainable healthcare practices aligned with GDP growth.
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The contribution of PROMs to health care sustainability Mark Harrison Stirling Bryan Deborah Marshall Nick Bansback
PROMs definitions • Patient-reported outcome measures ‘PROMs’ • Short, self-completed questionnaires • Measure impact of illness/health condition, from patient perspective • Quality of life, symptom severity, functional status, health status • Monitor progress of condition, effectiveness of treatment • Change over time • Assess quality of care/services CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Generic vs. Condition Specific • Generice.g. HUI, EQ-5D, SF- instruments • Comparable across diseases, sectors, against norms • Cost-effectiveness analysis • Condition/Disease/Population specific e.g. Oxford Knee Score, Seattle Angina Questionnaire • Developed for a specific setting • Sensitive to change/differences between people within condition • Detail & clinical decision making
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) • Alberta • Hip & knee arthroplasty (SF-36, WOMAC) • Heart & Lung Transplant Clinic • U of Alberta Hospital (HUI2, HUI3) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) • Alberta • Hip and knee arthroplasty (SF-36, WOMAC) • Heart and Lung Transplant Clinic • U of A Hospital (HUI2, HUI3) • Saskatchewan • Joint arthroplasty (EQ-5D) • Spinal surgery (EQ-5D) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) • Alberta • Hip and knee arthroplasty (SF-36, WOMAC) • Heart and Lung Transplant Clinic • U of A Hospital (HUI2, HUI3) • Saskatchewan • Joint arthroplasty (EQ-5D) • Spinal surgery (EQ-5D) • Manitoba • Winnipeg Joint Replacement Group • (SF-12, Oxford Scores) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) • Alberta • Hip and knee arthroplasty (SF-36, WOMAC) • Heart and Lung Transplant Clinic • U of A Hospital (HUI2, HUI3) • Saskatchewan • Joint arthroplasty (EQ-5D) • Spinal surgery (EQ-5D) • Manitoba • Winnipeg Joint Replacement Group • (SF-12, Oxford Scores) • Ontario • Electronic Rheumatology (eRHeum) and Initiatives Research Program (SF-36) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Routine PROMs collection: Canada • British Columbia • PEAK Project • Knee arthroplasty (EQ-5D, SF-12) • Alberta • Hip and knee arthroplasty (SF-36, WOMAC) • Heart and Lung Transplant Clinic • U of A Hospital (HUI2, HUI3) • Saskatchewan • Joint arthroplasty (EQ-5D) • Spinal surgery (EQ-5D) • Manitoba • Winnipeg Joint Replacement Group • (SF-12, Oxford Scores) • Ontario • Electronic Rheumatology (eRHeum) and Initiatives Research Program (SF-36) • National: • Rick Hansen Research Institute, Spinal Cord Injury Registry (SF-36) • Statistics Canada, Canadian Community Health Survey (HUI, RAND SF-36) • Canadian Multicentre Osteoporosis Study (HUI, SF-36) CIHI. PROMs Background Document. 2015. Available from: https://www.cihi.ca/sites/default/files/document/proms_background_may21_en-web.pdf
Sustainability Issues of health care sustainability
Sustainability Issues of health care sustainability
Sustainability Issues of health care sustainability How PROMs can contribute to sustainability
The wedge: unsustainable health care “Business as usual” “Sustainable” (equal to growth in GDP) From: Eliminating Waste in Health Care JAMA. 2012;307(14):1513-1516. doi:10.1001/jama.2012.362
The wedge: sources of waste “Business as usual” Failure of care delivery Failure of co-ordination of care Overtreatment Administrative issues Pricing failure Fraud and abuse “Sustainable” (equal to growth in GDP) From: Eliminating Waste in Health Care JAMA. 2012;307(14):1513-1516. doi:10.1001/jama.2012.362
The wedge: the cheese “Business as usual” Care delivery failure Poor co-ordination Overtreatment Waste & inefficiency Administrative issues Pricing failure Fraud and abuse “Sustainable” (equal to growth in GDP) From: Eliminating Waste in Health Care JAMA. 2012;307(14):1513-1516. doi:10.1001/jama.2012.362
Roles for routinely collected PROMs • Allocative efficiency • Which treatments to offer and to who • Which treatment is best for a given patient • Technical efficiency • Performance • Comparison of performance • Accountability • Are health resources being spent wisely • Health system level performance Smith & Street. Health Econ. 22: 119-131 (2013)
Stirling Bryan PROMs: from technology appraisal to technology management
Deborah Marshall PROMs as an outcome for continuous quality improvement
Nick Bansback PROMs to support informed patient decision-making
Format 3 presentations of 15 mins 5 mins for questions after each presentation Open discussion
Disclosures Nothing relevant • I hold the UBC Professorship in Sustainable Health Care, which is funded by: Amgen Canada Inc.; AstraZeneca Canada Inc.; GlaxoSmithKline Inc.; Merck Canada Inc.; Novartis Pharmaceuticals Canada Inc.; Pfizer Canada Incorporated; BoehringerIngelheim (Canada) Ltd.; Hoffman-La Roche Ltd.; LifeScan Canada Ltd.; and Lundbeck Canada Inc. • These companies are represented on my advisory council, offering advice/input but not mandatory recommendations.