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1 st regional meeting of National Bioethics Committees EMRO Cairo 5-7 May 2007

The Global Summit of National Bioethics Advisory Bodies an opportunity for dialogue and collaboration. 1 st regional meeting of National Bioethics Committees EMRO Cairo 5-7 May 2007. Dr Marie-Charlotte Bouësseau Ethics, Trade, Human Rights and Health Law. Overview.

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1 st regional meeting of National Bioethics Committees EMRO Cairo 5-7 May 2007

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  1. The Global Summit of National Bioethics Advisory Bodiesan opportunity for dialogue and collaboration 1st regional meeting of National Bioethics Committees EMRO Cairo 5-7 May 2007 Dr Marie-Charlotte Bouësseau Ethics, Trade, Human Rights and Health Law

  2. Overview • Context and historical background • Main outcomes of the 1st decade • Future perspectives

  3. Context • An increasing number of countries have created national ethics committees to provide advice to their executive and legislative branches and to the general public, about ethical issues related to health • Their members are appointed by Chief Executives, Ministers of Health, and legislatures, and their function is to analyse and offer recommendations regarding the ethical issues that arise in healthcare. In a few countries, these bodies are appointed outside formal governmental structures • Their mandate and functions differ. In some countries the topics dealt with covers a very wide range, while in others the focus tends to be the ethical review of research protocols

  4. Historical background • 1st Summit: San Francisco, November 1996 • Initiative from US NBAC and French CCNE • In conjunction with the 3rd World Congress of Bioethics • Participants from 18 countries representing national committees, Ministries of Health, and professional associations • Differences, but also areas of common interest were identified • 2nd Summit: Tokyo, November 1998 • 30 countries represented • Established formally the Global Summit of National Bioethics Commissions • 3rd Summit: London, September 2000 • 36 countries represented • Strong participation of committees newly established in Europe

  5. Historical background (cont.) • 4th Summit: Brasilia, November 2002 • 27 countries represented • Plenary discussion and breakout sessions • 5th Summit: Canberra, November 2004 • 18 countries represented • Participants limited to official advisory bodies appointed by governments, parliaments, health departments, medical research councils, rather than academic or medical associations • No communiqué was produced (≠ previous Summits) but the most valuable aspect was the discussion itself • 6th Summit: Beijing, August 2006 • 18 countries represented (Africa, Europe, North and South America, Asia) • addressed the tension between universal principles (international guidelines) and local cultures • Pertinent issues such as organ transplantation were openly discussed

  6. Main outcomes of the 1st decade • GSNEC provides a unique platform for exchange of information about on-going work of the NEC's • GSNEC gives the opportunity for an open debate, focusing on specific issues such as the protection of human participants in health research, stem cell research, end of life choices etc. The quality of this discussion has been identified by participants as the most valuable outcome. • GSNEC facilitates access to working documents prepared and circulated previous to the meeting (e.g. 5th summit in Canberra) • GSNEC contributes to up date information regarding the status and functions of national bodies (e.g. questionnaire sent before the 6th Summit in Beijing)

  7. Next Global Summit • France / Croatia building bridges … • September '08 time of the grape harvest…

  8. Towards a global network • Increasing participation from low and middle income countries: Need to identify mechanisms of solidarity between NEC • Benefiting from cultural diversity • Exchange of information, experiences • Open debate • Ensuring continuity: • WHO serving as secretariat • Role of international organisations

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