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Helen Olsen. A User Journey view from the outside. CEO & Managing Editor, UKAuthority Managing Editor, DCLG’s Local Digital Campaign Wife and Mother to three small boys - one with a complex disability Heavy user of Public Services - informed but still struggling!.
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Helen Olsen A User Journey view from the outside
CEO & Managing Editor, UKAuthority Managing Editor, DCLG’s Local Digital Campaign Wife and Mother to three small boys - one with a complex disability Heavy user of Public Services - informed but still struggling!
MyastheniaAbnormal muscle weakness and fatigue Congenital Myasthenic Syndrome - genetic disease - 2-4 per 1,000,000 Myasthenia Gravis / LEMS - autoimmune disease - 1 in 10,000 Problem at the junction between the nerve and the muscle: the signal does not get through. Characterised by rapid and variable fatiguing of skeletal muscles: impacts breathing, eating/swallowing, walking, eyes, hands etc.
18m old, arriving at party 2 hrs later at tea...