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The Post-Caring Experience of Former Family Carers – Evidence from Ireland

This study examines the post-caring experience of family carers in Ireland, focusing on their needs and challenges in the period after their caregiving role has ended. It addresses the lack of research and policy in this area and explores the emotional, social, and practical implications for former carers. The findings highlight the importance of providing support and services tailored to their specific needs.

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The Post-Caring Experience of Former Family Carers – Evidence from Ireland

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  1. The Post-Caring Experience of Former Family Carers – Evidence from Ireland Breen, Cronin, Hynes, McCallion & McCarron

  2. Gaps in understanding Dearth of research focusing on post-caring, especially post-death First Irish study on post-caring Irish post-caring policy & services context -6 weeks Carers’ Allowance/Benefit (i.e.€212/€213 per wk) -No specific health or social care policies in place Research Q: How do family carers perceive their own needs in the post-caring period? School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  3. Methodology Convenience sampling technique Recruitment via Carers Association & Information Packs 26 semi-structured interviews & 1 focus group (N=14) NVivo 8 - analysis from audio Template analysis (King et al, 2002; Crabtree & Miller, 1999) School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  4. Participant Details Gender: 7 males, 19 females Age (range 33 to 81 yrs; mode: 58 yrs; median: 56 yrs) Who caring for? - Parent (12) - Spouse (10) - Other relative (4) Length of time caring (range 6 months to 27 yrs; mode: 5 yrs; median: 5 yrs) School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  5. Primary medical condition of Caree School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  6. Post-caring transition School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  7. Time since transition Range: 3 months to 6 yrs Mode: 1 yr 4 months Median: 1 yr 6 months School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  8. Emptiness & Loss Emptiness of house Cut out of the system Loss of special relationship Enforced retirement without benefits Not prepared for post-caring Pre-caring world is gone (friends/work) School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  9. Emotional Reactions Anger: - Because of need to fight for services Guilt -Sudden death at home -Worrying about financial issues Anxiety – still feeling ‘on duty’/ inability to sleep Sadness/loneliness (esp at night) School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  10. Family conflict Especially between siblings Property/legal issues Lack of understanding of post-caring needs Redressing neglect of family members during caring School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  11. Post-caring support Role of Carers’ support groups Supportive families/friends/neighbours Health services: –removal of equipment –community nurses/G.P. visits – own initiative – no statutory health or social care services School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  12. Taking care of self Keeping busy Get out of house Proactive – have to do it themselves Giving back – stop focusing on self Comfort from belief in after-life School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  13. World-less Pre-caring world Supports needed to facilitate move to new world Caring world New world FormerCarers caught between worlds School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  14. Post-Carers’ Needs Preparation for post-caring Counselling Career advice & dedicated return-to-work services Home visits Training sessions on conflict resolution Financial support for longer than 6 weeks Dedicated post-caring support groups & telephone helplines School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  15. Link to theory Fits with ‘Carer Career’ & Stage Models (Nolan et al, 2003; Brown & Stetz, 1999;Aneshensel et al, 1995; Lindgren, 1993) Post-Nursing Home Placement stages (Davies & Nolan, 2003; 2004; 2006) Post-death stages (Larkin, 2009) School of Nursing and Midwifery 24 D'Olier Street Dublin 2

  16. Acknowledgements Funders: Irish Research Council for Humanities & Social Sciences (IRCHSS) and Care Alliance Ireland Recruitment: The Carers Association & 16 centre managers nationwide 40 Former Family Carers School of Nursing and Midwifery 24 D'Olier Street Dublin 2

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