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Child Health Research Core

Child Health Research Core. John Widness , MD Professor of Neonatology in the Dept. of Pediatrics Director, Child Health Research Core Associate Director, Clinical Research Unit February 7, 2014. Child Health Research Core (CHRC): Who We Are.

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Child Health Research Core

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  1. Child Health Research Core John Widness, MD Professor of Neonatology in the Dept. of Pediatrics Director, Child Health Research Core Associate Director, Clinical Research Unit February 7, 2014

  2. Child Health Research Core (CHRC): Who We Are A campus-wide,diverse group of leaders & staff working together within the ICTS to provide U of IA colleges & programs with infrastructure needed to support T1 to T4 child health-related research.

  3. Our “Life Course Perspective” Recognition that an individual’s health trajectory in life is determined by early life events & by the interplay between risks & protective factors. What populations are included in your research?

  4. Core Goals of CHRC To improve child health & wellness by: • Facilitating & encouraging evidence-based research; • Integrating within existing U of IA& community child health care systems; • Translating & disseminating cost effective therapies to our community, state & nation.

  5. “Child Health’s Boots on the Ground!” • 87 Iowa Perinatal Satellite Delivery Hospitals • 47 U of IA Children’s Hosp Subspecialty Satellite Clinics • 7 College of Dentistry Satellite Clinics Can our 131 Child Health satellite facilities help your facultyconduct research?

  6. A Prior ICTS Child Health Success The INSPIRE Project (InternationalStudy Group of Pediatric Pancreatitis: In search for a cure). The first patient registry for childhood pancreatic disease AliyeUc • Successful NIH R21 funding for multicenter registry (RedCap) • Collaborating centers in Australia, Canada, and Israel • Created WIKI resource for PI’s & coordinators • Year 1: • Enrolled 229 children with acute recurrent & chronic pancreatitis at all 14 sites • Began DNA & serum biobankfrom patients & relatives • 3 manuscripts accepted or submitted • Began monthly INSPPIRE newsletter

  7. Examples of CHRC’s Current Efforts Midwest regional family-partnered cystic fibrosis pragmatic trials Improve dental care for children: caries & operative procedures T Starner K Gasparoni-Weber E Parker Adverse Childhood Events (ACEs) partnerships with ISU, IA DPH Research Workshop for School Nurses AM McCarthy Delta Center: impacting early childhood health, education & policy J Spencer

  8. Your Help Guiding CHRC’s Future Direction Use of iPad & Smart phone platform (connected to EPIC) to provide state-wide NICU service Controlled trials of gifted & talented children? P Brophy J Segar Marketing ICTS Child Health services to communities N Colangelo Collaborative CH PK/PD Pharmaceutical Research T Gruca OTHER IDEAS?! Use of on-line study subject information summary & consenting infants & children HSchartz P Veng-Pedersen

  9. What Can We do for Your College? Give Child Health’s Life Course Perspective regarding wellness & disease, how can our ICTS: • Become better known & available to your faculty? • Learn more about your college’s (or program’s) interests, expertise & goals? • Better serve your needs?

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