Nutrition Support for Stickler Syndrome

1. Nutrition Support for Stickler Syndrome Lori Bryant, RD, LD, NSCA-CPT

2. Support: To bear the weight of, to hold in position so as to keep from falling, sinking, or slipping; to be capable of bearing; withstand; to keep from weakening or failing; strengthen; to provide for or maintain • The advice in today’s presentation is not intended to replace advice given by your doctor or other health professional. Discuss any new treatments with your doctor.

3. Can nutrition really affect a genetic disorder? • Nutrition can change outcomes of conditions like diabetes, heart disease, and hypertension. • Patients with Cystic Fibrosis (a genetic disorder) can thrive on the right diet. • Each body is unique genetically, therefore, each body needs unique nutrition. • The best nutrition advice is tailored to your lifestyle, environment, food preferences, personality and now we add genetics. • A dietitian can help you individually. • Nutrition could explain the varying degrees of expression of Stickler Syndrome in generations.

4. Ruth DeBusk says you don’t have to accept defeat due to your DNA: “Genes matter, but they’re not necessarily destiny. Our challenge is to learn what our genetic makeup is and then to make the appropriate diet and lifestyle choices throughout our lives."

5. Let food be thy medicine, thy medicine shall be thy food. ~Hippocrates ca. 460 BC – ca. 370 BC • Allow good nutrition to lift any burdens on the body and nourish the cells so that they might perform at optimum levels. Nutrition Support from Food

6. Lift the burden • What foods might I be eating that are increasing my burden? • How do I know? • Cleanse or Detox • Food elimination, reintroduction with rotation • Eliminating toxic foods indefinitely • Nourish the cells • Every bite that we take becomes a part of us. • We can be deficient in essential nutrients. • How can I nourish the cells? • Support with food • Support with supplements

7. Control free radical damage • Oxidative stress on the body is a natural process in aging-our bodies break down over time. • As metabolic processes occur in the body, free radicals are produced and cause damage to cells. • How do I control free radicals? • Lower calories • Control portions • Eat when physically hungry • Prevent storage • Keep in mind the oxidative stress as you reach for second helpings. • “Exercising it off” also produces free radicals • Add anti-oxidants via good nutrition and supplements to squelch free radical activity

8. www.glucotize.com

9. Reduce inflammation • Inflammation is part of the complex biological response of tissues to harmful stimuli. • Inflammation is an attempt by the organism to protect itself. • Inflammation can be caused by poor diet or inappropriate diet per individual. • How do I reduce inflammation? • Eliminate foods with known inflammatory response. • Choose foods with a low Glycemic Load. • Add foods known to be anti-inflammatory.

10. Eliminate foods with inflammatory response • Foods associated with food allergies, intolerances, and sensitivities • Lactose and dairy, wheat protein, gluten, yeast, soy, egg, artificial sweeteners, flavors, and colors, peanuts, artificial fats, sweeteners, some proteins (shellfish, processed meats) • Foods which you react to negatively based upon elimination/reintroduction trials or food allergy testing • Possibly avoid nightshade family TEPP • Tomatoes, Eggplant, Potatoes (white), Peppers

11. Choose foods with lowGlycemic Load • Glycemic Load (GL): a measure of how quickly a portion of food turns to blood glucose and induces an insulin response. • Low (0-10) Moderate (10-20) High (>20) • http://www.mendosa.com/gilists.htm • GL is a better measure and more useful tool than GI because portion is considered. • Choose foods with more protein and fiber • 1 cup blueberries GL=3 • 1/3 cup raisins GL=23 • 2 Tbsp almond butter GL=0 • ¾ cup baked potato GL=23 • ¾ cup baked sweet potato GL=8 • Combine foods to lower the GL

12. Add foods which decrease inflammation • Mediterranean diet • Rich in whole grains, beans, veggies, fruit, oils, seafood • Vegan diet • Known high anti-oxidant foods • Colorful fruits and veggies, omega 3 oils and essential fatty acids, nuts • Consume as many foods in raw, natural state • Choose foods based on inflammation factor • www.NutritionData.com

16. Add supplements to support body part affected by Stickler Syndrome • General collagen support • Eyes • Ears • Joints Nutrition Support from Supplements

17. Collagen support • Glucosamine/Chondroitin • Quercitin • Black and green tea, capers, apples, red grapes, leafy greens, berries • Vitamin C • Rose hip, red pepper, guava, kiwi, broccoli, brussel sprouts, strawberry, orange • Vitamin E • Wheat germ oil, almonds, olives, leafy greens • Biotin • organ meats, oatmeal, egg yolk, soy, mushrooms, bananas, peanuts, and brewer's yeast • Folic Acid • Leafy greens, legumes, liver, baker’s yeast, sunflower seeds • Calcium • Yogurt, milk, cheese, spinach, legumes, canned salmon • Vitamin D • Unrefined cod liver oil, salmon, mackerel, tuna, sardines, egg yolk, liver • Magnesium • Halibut, whole grains, nuts and seeds (pumpkin), legumes, sea salt • Standard Process/MediHerb specific formulas • Collagen C • Cataplex E • Ligaplex I

18. Eye Support • Carotenoids • Xanthophylls • Lutein, Zeaxanthin • Protective pigments (anti-oxidants) found on lens and retina of eye • Spinach, kale, greens • Carotenes • Alpha-carotene, beta-carotene • Carrots, pumpkin, sweet potato, spinach, greens, • Omega 3 fatty acids • Cold water fish, cod liver oil, algae extracts • DHA • Taurine (amino acid) • Brewer’s yeast, eggs, fish, red meat • Vitamin C, Vitamin E, Beta-Carotene, Zinc, Copper • EPO-Erythropoietin • www.naturaleyecare.com • Juice Plus, raised lutein/zeaxanthin by 44% • Standard Process/MediHerb specific formulas • Iplex • Vitanox • Bilberry

19. Ear Support • Magnesium • Halibut, whole grains, nuts and seeds (pumpkin), legumes, sea salt • Free radical scavengers Vitamins A, C, E in combination with Mg • Zinc • Oysters, beef, soybeans, chickpeas, wheat germ, pumpkin seeds • Anti-oxidants • Omega 3 fatty acids-EPA/DHA • Alpha Lipoic Acid • Red meat, organ meats, broccoli, spinach, Brewer’s yeast • Gingko Biloba • Butcher’s Broom • Standard Process/MediHerb specific formulas • Congaplex (immune support-prevent infection in ear) • Gingko

20. Joint Support • Omega 3 fatty acids • Alpha Lipoic Acid • Vitamin E • Vitamin K • Parsley, leafy greens, brussel sprouts, broccoli, cabbage, asparagus • Quercitin • Nucleoproteins (from organ meats) • Salacia Reticula • Conjugated Linoleic Acid • Grass fed beef, eggs • Glucosamine/Chondroitin • Hyaluronic Acid • Exercise • Standard Process/MediHerb specific formulas • Saligesic • Ostarplex • Catalyn

21. Conclusion • Nutrition Support from Food • Choose a diet, based upon personal tolerance and needs, rich in leafy greens and other vegetables, colorful fruits, nuts, legumes, oils and omega 3 fatty acids, certain types of fish, eggs, and some red and organ meats concentrating on portion control and low glycemic load choices. • Nutrition Support from Supplements • Supplement with nutrients which could be deficient in diet and therefore in body • Basic whole food based multi-vitamin • Omega 3 fatty acids • Anti-oxidants • Others specific to condition

22. Lori Bryant, RD, LD, NSCA-CPT 1901 Gateway Dr. Suite 175 Irving, TX 75038 office: 214-596-9302 cell: 214-641-9461 lbbryant@gmail.com