1 / 11

The disability experience conference

The disability experience conference. Improving Health Information Access for the Visually Impaired: An Application of Spoken Web Technology. Lin, S., Beam, E., Szewczyk , R., and Padman , R., PhD H. John Heinz III College, Carnegie Mellon University, Pittsburgh, PA Contact : sclin@cmu.edu.

carol
Download Presentation

The disability experience conference

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. The disability experience conference

  2. Improving Health Information Access for the Visually Impaired: An Application of Spoken Web Technology • Lin, S., Beam, E., Szewczyk, R., and Padman, R., PhD • H. John Heinz III College, Carnegie Mellon University, Pittsburgh, PA • Contact: sclin@cmu.edu

  3. Background • VI patients to depend heavily on family and friends to access health information • VI associated with depression, isolation, poor health outcomes • Visually Impaired are disproportionately from minority and disadvantaged backgrounds • Especially among elderly, VI patients need more medication management help and information coordination • The number of VI patients likely to increase as population ages

  4. Adaptive Technologies are not ubiquitous • Adaptive technologies not ubiquitous, very expensive and hard to use/learn • Low-cost or free options are of lower quality • Even then only 19% of surveyed consumer health websites are accessible • Simpler technologies may be a better tool for reaching this population

  5. The Prototype • Spoken Web enabled Care Management Platform (SW-CMP) runs off the regular phone line • Accessible by anyone with access to a phone, including the elderly and patients in a restricted hospital setting • Collaboration with CMU and IBM Research Labs in New Delhi, India, and IBM Research Human Ability and Accessibility Center in the US • Works via “Voice Site”

  6. The Prototype • Securely create, update, manage and monitor records • Improve health literacy via education and social collaboration • Automated reminders for clinical monitoring and follow-up care and appointments • Automated reminders for med-adherence, alerts for dosage adjustments, and warnings about adverse drug events.

  7. method • Survey, Interview, and Focus Groups • Partnership with the PA Council of the Blind and the Blind and Rehabilitation Services of Pittsburgh • Assess Challenges, Needs, Opinions, Existing Solutions, Other Technologies

  8. Findings: Needs • Accessibility without dependence on other people or advanced technology • Access to patient education • Way to transmit secure messages to providers • Store recent and historical lab results • Receive alerts about abnormal lab results, medication changes, and upcoming appointments • Sharing patient information easily • Access via multiple points (being able to access the information via phone, smart phone, and internet) • Connect with others

  9. Findings: Concerns • Doctor’s willingness to use a phone based tool • Privacy dangers • Suggested additional user groups for this application: low vision, elderly and hospitalized patients • Lack of skip/speed options • Inconsistent Navigation, Unclosed Loops

  10. importance • VI patients have unaddressed needs that can lead to poorer health outcomes than their peers • Meeting this need will reduce health disparities • Make sure that healthcare reform does not leave behind patients with disabilities • Make sure that the push for increased accessibility in all industries does not leave out healthcare

  11. References • Lüchtenberg, M., Kuhli-hattenbach, C., Sinangin, Y., Ohrloff, C., & Schalnus, R. Accessibility of health information on the internet to the visually impaired user. Ophthalmologica. 2008; 222(3): 187-93. • Bobbi L. Hillen, LCSW; Felix M. Barker II, OD, MS; Mary G. Lawrence, MD, MPH; COL Donald A. Gagliano, MD, Harnessing the Power of Information Technologies for the Visually Impaired. FederalPractitioner. November 2012. • Bath, P. A., Beverley, C. A., & Booth, A. Health information needs of visually impaired people: A systematic review of the literature. Health and Social Care in the Community. 2004: 12(1), 1-24. • R. Padman, E. Beam, R. Szewczyk, A. Kumar, S. Agarwal, M. Puri, M. Singh, A. Nanavati, P. Khera, "Engineering and pilot proxy evaluation of a spoken web enabled care management platform", Proceedings of UKAIS Conference, Worcester College, Oxford University, UK. 2013. • McCann RM, Jackson AJ, Stevenson M, Dempster M, McElnay JC, Cupples ME. Help needed in medication self-management for people with visual impairment: case-control study. British Journal of General Practice. August 2012: 62(601), 530-7. • Beverley, C. A., Bath, P. A., & Barber, R.. Health and social care information for visually-impaired people. AslibProceedings. 2011: 63(2), 256-274 • Improving the Nation’s Vision Health: A coordinated public health approach. Division of Diabetes Translation, National Center for Chronic Disease Prevention and Health Promotion. 20 April 2009 • McCann, R, Jackson, J. Medication handling and the elderly patient: a challenge for the optometrist. Optometry in Practice. 27 May 2012: 13 (2), 55-64

More Related