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International Retinoblastoma Pathology Guidelines for Staging System Development

This project aims to create pathology guidelines for the staging of retinoblastoma, focusing on reproducibility in developing countries. Collaborating with various international cooperative groups and institutions, the objective is to evaluate current practices and define clear definitions and criteria. The initiative includes surveys, management roles, and partnerships to enhance research and treatment standardization.

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International Retinoblastoma Pathology Guidelines for Staging System Development

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  1. RETINOBLASTOMAINTERNATIONAL RETINOBLASTOMA STAGING SYSTEM Microstaging

  2. Objectives • Pathology guidelines • Which pathology features are going to be considered? • Definitions • Focus on reproducibility for developing countries

  3. Proposed steps • Evaluation of current practice of participating groups • Survey • Management roles

  4. Who is going to participate?Invited cooperative groups • COG Murali and Patty • Mexican cooperative group: Carlos Leal and Lourdes Cabrera • Indian cooperative group: Ravi • AHOPCA: Central America and St Jude • Brazilian cooperative group: Celia • Dutch group: Antoinette • INCTR: Carlos Leal and Ian Magrath • PINDA: Julia Palma

  5. Single institutions • St Jude (Carlos Rodriguez Galindo) • Inst Curie (Francois and Xavier Sastre) • Garrahan (Guillermo and Pety Davila) • Cape Town (Clare) • Memorial Sloan Kettering (Ira) • CHUV (Maja Beck) • Medellin and Bogota • Columbia Presbyterian (Manuela) • Chennai • Brno (Tomas)

  6. Partner programs • St Jude-Central America • Inst Curie-Algeria • Netherlands-Indonesia • Argentina-Bolivia-Paraguay-Colombia • COG-India • Los Angeles-Columbia-Mexico

  7. Other groups (people) to contact • Canada • Turkey • UK, Italy, Germany • Russia, Poland, Bielorussia • China • Japan

  8. How can we work together? • Contact missing groups • List of groups, institutions and people • Survey: Pathology guidelines, definitions, some idea on treatment? • New internet meeting • Committees

  9. Potential future work • Guidelines • Meta-analysis • Registry? • Cooperative study on specific issues?

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