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Research and Programs to Eliminate Cancer Disparities

BRIDGING THE GAP. Research and Programs to Eliminate Cancer Disparities April 19, 2007 Marriott New Orleans at the Convention Center New Orleans, Louisiana. NBLIC’s Seven Guiding Principles of Community-Based Participatory Research (CBPR)

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Research and Programs to Eliminate Cancer Disparities

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  1. BRIDGING THE GAP Research and Programsto Eliminate Cancer Disparities April 19, 2007Marriott New Orleans at the Convention CenterNew Orleans, Louisiana

  2. NBLIC’s Seven Guiding Principles of Community-Based Participatory Research (CBPR) Selina A. Smith, Ph.D., M.Div., Joyce Q. Sheats, R.N., M.P.H., Jackson Smith, III, LaDonna Carter, Sandra J. Hamilton, R.N., F.N.P., MEd. National Black Leadership Initiative on Cancer III: Community Networks Program (NBLIC III) A program of the National Cancer Institute

  3. Community-Based Participatory Research (CBPR) A collaborative research approach that is designed to endure and establish structures for participation by communities affected by the issue being studied. Representatives of organizations and researchers are involved in all aspects of the research process to improve health and well-being through taking action, including social change

  4. CBPR • Co-learning and reciprocal transfer of expertise, by all research partners with particular emphasis on the issues that can be studied with BRPR methods; • Shared decision-making power; • Mutual ownership of the processes and products of the research enterprise.

  5. Community-Based Participatory Research • Kurt Lewin - active involvement or participation • Paulo Freire - mutual learning and action-reflection • Barbara Israel – nine principles

  6. CBPRPrinciples* • Recognizes community as a unit of identity. • Builds on strengths and resources within the community. • Facilitates collaborative, equitable involvement of all partners in all phases of the research • Integrates knowledge and action for the mutual benefit of all partners. • Promotes a co-learning and empowering process that attends to social inequalities.

  7. CBPRPrinciples* 6. Involves a cyclical and iterative process. 7. Addresses health from both positive and ecological perspectives. 8. Disseminates findings and knowledge gained to all partners. 9. Involves a long-term commitment by all partners *Israel, B. A., Schulz, A.J., Parker, E.A., (1998). Review of community-based research; Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173-202.

  8. National Black Leadership Initiative on Cancer’s (NBLIC III) Seven Guiding Principles of Community-Based Participatory Research (CBPR)

  9. Seven Guiding Principles • We are Family • Just Stand • It Takes a Village • Come as You Are • Health, Wholeness & Healing • Go Tell it on the Mountain • We Shall Overcome, Someday

  10. We are Family • Describes Community-based (not community-placed) method • Define community-based participatory research within historical context • Nationwide network of community stakeholders • Initiative arising out of the community, for the community

  11. It Takes a Village • Community Partnerships with mutual trust and respect • Community coalitions • Community “Gatekeepers” • Community Resource

  12. Come as You Are • Shared learning process • Community enhancement through empowerment • Academic and community training • Better prepared community leadership • Diverse scientific pool

  13. Just Stand • Current research grounded in past research • Reduce cancer incidence and mortality • Understand processes facilitating positive outcomes • Dual pursuit of action and research

  14. Just Stand • Engage community through community coalitions • Cyclic approach • Pursues change and understanding • Refine and replicate

  15. Best Practices • Stay Beautiful, Stay Alive – Breast & Cervical Cancer • Down Home Healthy Living – Colorectal Cancer • For Men Only – Prostate Health & Co-morbidity • Clearing the Air – Tobacco Use & Lung Cancer

  16. Health, Wholeness & Healing • Holistic approach to community-based research • Individual knowledge, attitude and skills • Community involvement with planning and implementation for sustainability • Integration of cancer control • Educational program focused on co-morbidity • Recognizes community diversity

  17. Go Tell it on the Mountain • Extensive process and outcome evaluations • Scientific merit • Public awareness • Community advocacy • Affecting policy change

  18. We Shall Overcome, Someday • Sustained effort • Program sustainability • Long-range effects

  19. Online Module Session • 10 – 15 Item Pre-Knowledge Questionnaire • Overview of individual principles • 10 – 15 Item Post-Knowledge Questionnaire

  20. Implications Greater stakeholder buy-in into the CBPR process may result through self-identification with these principles

  21. Sustainability This training tool ensures that NBLIC’s nationwide network of community stakeholders, in conversation with state-of-the-art cancer screening and treatment partners, will continue to combat cancer health disparities among African Americans.

  22. Thank You Morehouse School of Medicine 720 Westview Drive, SW Atlanta, Georgia 30310 404-756-5205/1-800-724-1185

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