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This paper discusses the content, effectiveness, and evaluation of smoking cessation websites that combine psychological theory and internet technology to disseminate programs at a population level. It explores the benefits of using the internet for recruitment and support, as well as the potential for tailored counseling and personalized follow-up. The aim is to assess the efficacy of these websites, identify effective features, and promote innovation in smoking cessation programs.
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Combining psychological theory and internet technology to disseminate smoking cessation programmes at population level Jean-François E T T E R Dr. polit. sci., lecturer Institute of social and preventive medicine Faculty of Medicine University of Geneva, Switzerland SRNT Tuebingen, October 9, 2004
Outline • Content of websites • Tailoring using psychological theory • Effectiveness ? • Evaluation of websites • RCTs on the internet • Perspectives
Psychological support • Face-to-face: effective but costly • Once a website is developed, low cost per smoker • Internet: large recruitment, available 24 / 7 / 365 • Switzerland: >60% internet users • 6% of U.S. internet users searched info on how to quit smoking (= 7’000’000 people) • … 18% of those with less than high schoolPew Internet & American life http://www.pewinternet.org/pdfs/PIP_Health_Report_July_2003.pdf
Reach: e.g. stop-tabac.ch • > 100'000 personal feedback reports produced • 2004 = 40'000 visitors / month • Total > 1,400,000 visitors since 1997 • Weekly news sent by e-mail to 10'000 people • 6 languages • 1st in Google, Yahoo, Altavista (in French) • Compare with clinic: ~50 clients / month
Typical content: not interactive PULL • library, PDFs • fact sheets • video • addresses: clinics, help / support • links • news PUSH • general (bulk) e-mails
Website content: interactive PULL • discussion groups, chat rooms • personal stories • tests: dependence, withdrawal, $ spent on cig • FAQ • quiz • computer-tailored counseling PUSH • tailored e-mails, text messages on cell phones • one-to-one counseling by e-mail
Number of sessions (face-to-face) Fiore et al. Clinical practice guideline, USDHHS 2000
Internet: follow-up • Data storage, incl. e-mail addresses- data protecion laws • Comparison with answers given on last session- progress reports • Personalized follow-up (e.g. more intensive just after the quit date) • Discussion forums: people come back to read answers to their messages - daily sessions in some people
Number of formats (face-to-face) Formats: e.g. Self-help materials, telephone, groups... Fiore et al. Clinical practice guideline, USDHHS 2000
Enrol smokers for: • Smoking cessation clinics • Telephone quitlines • Tailored letters, booklets by snail mail
Statistics, Stop-tabac.ch, Aug. 2003 35’000 visitors
Social support • Effective, according to USDHHS guideline + meta-analysis • New + specific to the web: Discussion + Chat • Not yet evaluated : very interesting research question ! • Counselor, individually - e-mail - telephone (help line) => costly
Distribution of smokers by "stageof change", U.S.A 1999 Current Population Survey Wewers et al. Preventive Medicine 2003, 36, 710-20
Distribution of smokers by "stageof change", Geneva 1996 Etter et al. Preventive Medicine 1997 26(4), 580-585
Smokers and EX-smokers by "stage of change", Stop-tabac.ch, 2004 => How to attract Precont. + Contemplators ? Unpublished data
Develop different pages / services to suit the needs of different groups
Computer-tailored counseling Assessment (questionnaire) Data processing Data storage Individual counseling letter Follow-up e-mail Personal page accessedwith code Invitation to2nd assessment progress report
Behavior theory • Transtheoretical model of change • Ajzen+Fishbein: Theory of planned behavior • Bandura: Social learning theory (self-efficacy) • Health Belief Model • Protection Motivation Theory • PRECEDE / PROCEED model • Addiction and withdrawal (DSM-IV, ICD-10)
Tailoring variables • Demogr., have children, country of residence • Smoking status • Ex-smokers: - quit date- withdrawal symptoms - use of medications (NRT, zyban)- perceived risk- self-efficacy (relapse situations)
Tailoring variables: smokers • Smokers: - motivation to quit- dependence level- past quit attempts (date, duration)- intention to use treatments + medications- perceived risk / benefits of smoking / quitting - use of self-change strategies • Preferences for frequency / type of support • Human-Computer interaction theory
Evaluation of websites Aims of evaluations: • Assess efficacy • Identify most effective features • Improve quality • Minimize harm • Promote innovation • Increase confidence (in users + funding agencies) • Improve competitivity (>200 websites) • Are so many websites needed ?
Evaluation of smoking cessation websites • Needs of users, preferred services / pages • Which service is best suited to each category (current / former smoker, age, sex, FTND, stage) • Time frame (e.g. more frequent after quit date) • Outcome research: RCTs- smoking cessation- compliance, use of treatments- effect of interactive features, chat, discuss. forums- incremental effect of follow-up
Bock et al. N&TR 2004;6:207-19 • Review of smoking cessation websites in English • Found 202 websites • 46 sites included in evaluation Criteria: • Content coverage • Content quality, accuracy • Usability • Interactivity
Bock et al. Interactive features • % websites with interactive features, among sites that cover each key component: • Advise every smoker to quit: 0-11 % • Assess readiness to quit 33 % • Assist with quit plan 16 % • Provide practical counseling 20 % • Intra-treatment social support 33 % • Recommend use approved pharma 26 % • Arrange follow-up contact 56 %
Bock et al. 5 best websites • Canadian Cancer Society: www. Cancer.ca/tobacco • QuitNet: www. Quitnet.com • American Lung Association: www. Lungusa.org/tobacco • University of Geneva: www. Stop-tabac.ch • Arizon Smoker’s Helpline: www. Ashline.org
Efficacy: claims • Google: « quit smoking », first 3 in the list (underlined by us) • « X combines already proven effective methods of treating tobacco addiction into a powerful and effective individually controlled program that is available to anyone, anytime, anyplace » • « Y unites three independent cessation resources - motivation enhancement, a quality education, and serious group support - to form a highly effective nicotine dependency recovery tool »
Efficacy: randomised trials • Smokingzine.org vs control website, in schools, grades 9-11. In non-smokers, decreased intention to smoke, no effect in smokers at 6 mo. (Skinner) • Committed Quitters (Strecher, Shiffman, West) Internet, tailored vs untailored, short-term- 10-week continuous abstinence, intent-to-treat- tailored 23%, untailored 18%, p<.001, OR=1.34 • RCT lung cancer screening patients: booklet vs. list of websites: effect on quit attempts only (Clark) • Efficacy of other internet programs: unknown
Cochrane review: computer-tailored • Computer-tailored programs, total N=17,200 on paper or PC, not on the internet • Cochrane review: OR = 1.56 (14 studies) • vs. standard materials: OR = 1.36 (10 studies) • vs. no materials: OR = 1.80 (3 studies) • Intervention: 6.1% • No treatment: 4.3% • Difference: 1.8% • NNT: 54
Why are there so few RCTs ? • Same as for other prevention programs: general lack of scientific evaluation • RCTs on the internet: specific problems But: • This field should not distinguish itself from other fields by the absence of RCTs • RCTs are nevertheless feasible
RCTs on internet: specific problems • Control group: other websites a few clicks away • Assigned to both intervention + control group • Attrition rate (only 30% present at follow-up) • Selective dropout of those who fail to quit • Measuring exposure to the intervention • Consistency of intervention across subjects • Measuring outcome: validity issues • Identification of participants
RCTs on internet • Randomization is possible: tailored vs untailored programs + e-mail programs + control websites • E-mail interventions: effective in other fields (lower back pain) • Specific to the internet: discussion forums + chat • Forums + chats: need to evaluate their:- content (qualitative surveys)- effectiveness (RCTs)- work best for whom? (recent quitters?) • RCT: direct comparison of websites
Conclusions (1) • Internet: potential for high quality information + treatments from qualified professionals • Computer-tailored programmes: effective • Is internet effective? Too few RCTs • Evidence for efficacy from RCTs: - short-term only (10 weeks, 6 months), - at best mixed … or inexistent • Not enough research published • Incremental efficacy of specific features?- forum, chat, quit date recalls
Conclusions (2) • Interactivity = not used enough by websites • Let users contribute to the content of the website(chat, discussion forums, personal stories) • Switch from teacher centered to learner centered • Perspectives:- combine with medications (compliance)- more sophisticated, interactive interventions