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“It’s so strange”: South Asian Carers’ views of various places of care for their relative with Dementia. Divya Chadha Doctoral Researcher University of Birmingham. Why is this interesting?.
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“It’s so strange”: South Asian Carers’ views of various places of care for their relative with Dementia Divya Chadha Doctoral Researcher University of Birmingham
Why is this interesting? • South Asian (SA) carers were unaware of various places of care/services suitable for their relative with dementia • Help was wanted but declined when offered • Understanding of what makes SA carers access/not access services for their relative with dementia
Background Research • The ageing SA population Increase of dementia prevalence • Policy context= Dementia UK Report (2007) National Dementia Strategy (2009) • Dementia service uptake amongst the SA community is poor • No research looking at SA carers views on the various types of care places
Method • Qualitative analysis most suited • IPA not chosen as research not centered around personal experiences • Grounded Theory seen as an appropriate method • Best method to answer the question • Iterative + allows theory generation
Method • Kathy Charmaz’s Constructivist version of Grounded Theory • Best fit with researcher’s epistemological position • 10 interviews completed + transcribed • Interviews completed with “decision makers” rather than hands-on carers of the person with dementia
Preliminary Analysis • The concept of “strange” “ It’s a strange environment, with strange people and strange rules of living” “Why would I want strangers in my house touching my mum?” “It’s just so strange” “Every little thing which is important to him is different and strange in the day centre”
Preliminary Analysis • “It’s all about the bonding” “I have this feeling of…not duty or anything but a sense of feeling too close to mum to consider those options” “the greater the sense of attachment, lesser the chances at looking at extra support” “I feel I am attached to him, receiving the extra support makes me feel I am cutting off this attachment”
Preliminary Analysis • “Comparisons with home” “No NHS or care facilities exist back in India-why do we expect it here?” “Back home its all about keeping the loved one in the community- no old age homes for us!” “Why is there such an emphasis in providing such detailed care services here- it’s like a luxury here compared to Pakistan”
Discussion • Difference in opinion amongst different “decision makers” • Effect of acculturation • Problems in identifying the “decision makers” within the family system
Future Research • What are the factors which predict access to health services amongst SA carers for their relative with dementia • What services would the SA carers prefer for their relative with dementia?
Thank you for your time Divya Chadha 516 School of Psychology University of Birmingham B15 2TT Tel: 01213012068 Email: divya.chadha@bsmhft.nhs.uk