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Awareness and Advocacy Working Group

Awareness and Advocacy Working Group. Ellayne S. Ganzfried. Members. Ruth Patterson-Canada Rick Berry-Canada Keith Lincoln-Europe/Sweden Joanie and Sarah Scott- UK Clare McCann-New Zealand Subhash Bhatnagar- US/India Glenn Goldblum-South Africa. Working Group Goals.

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Awareness and Advocacy Working Group

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  1. Awareness and Advocacy Working Group Ellayne S. Ganzfried

  2. Members • Ruth Patterson-Canada • Rick Berry-Canada • Keith Lincoln-Europe/Sweden • Joanie and Sarah Scott- UK • Clare McCann-New Zealand • Subhash Bhatnagar- US/India • Glenn Goldblum-South Africa

  3. Working Group Goals • To build capacity in aphasia consumer organizations to support the involvement of people with aphasia at an international level • To increase awareness about aphasia working closely with the World Stroke Organization in its awareness and advocacy roles

  4. Awareness is Key • Group consensus to initially focus on aphasia awareness raising activities • Difficult to build capacity without awareness • Need to identify current international consumer groups and/or key contacts within country/region • Coordinated approach spearheaded by AU

  5. Initial Working Group Actions/Projects • Create an Aphasia United You Tube Channel • Designate an International Aphasia Day/Month • Create an International Symbol to Represent Aphasia

  6. Aphasia United You Tube Channel • Videos should represent various countries/cultures • Mechanism for “vetting” videos to be a trusted site • Categorize videos based upon criteria i.e., PWA, family/friend, type of aphasia, etc. • Put out a “call for videos” Internationally

  7. Next Steps • Joanie Scott has set up AU You Tube channel https://www.youtube.com/channel/UCKVdScVp7g9z999UtT7h2eg/feed • AU affiliates/advisory council to send current videos • Establish categories and criteria for posting • Put out an International “Call for Videos” • Link to AU website

  8. International Aphasia Day/Month • June is currently NAAM in USA/Canada/UK- no coordinated efforts in other countries • Create a “flash mob” event worldwide • Consider time of year that works for all countries i.e. weather conditions • Collaborate with WSO to promote

  9. Next Steps • Contacted Jackie Stark, President of AIA to discuss combining efforts- AIA has attempted to designate October in European countries • Promoting NAAM this year in South Africa and New Zealand through WG members • September suggested as best month for most countries; need to confirm

  10. Create an International Aphasia Symbol • Iconic symbol used worldwide would increase aphasia awareness • Colored ribbon for aphasia suggested- many people use grey and/or red http://www.disabledworld.com/disability/awareness/ribbons.php • Hold contest/campaign to solicit ideas

  11. Next Steps • Publicize Icon contest • Contact SCOPE in Australia regarding their communication access symbol http://www.scopevic.org.au/index.php/site/home

  12. Items for Discussion • Need for additional WG members to represent other areas i.e., Australia, Asia, Africa • Confirmation of relevance of current projects • Ideas for International Aphasia Day/ Flash Mob event • Consensus on need for International icon • Opportunities to collaborate with WSO on awareness/advocacy • Aphasia Consumer Organization Inventory

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