Working Together as Partners in+care Introducing the Partners in+care Toolkit

1. Working Together as Partners in+care Introducing the Partners in+care Toolkit June 28, 2012 For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

2. Welcome & Overview • This Partners in+care webinar is offered as part of the in+care Campaign. • The in+care Campaign is a national effort to improve retention in HIV care. • Webinars are one of many Partners in+care activities designed to engage people living with HIV/AIDS and their allies in the in+care Campaign. • This webinar introduces tools you can use to engage peers and consumers in the in+care Campaign. Michael Hager NQC Manager, TA/Dissemination New York, NY mth02@health.state.ny.us For more information: www.incarecampaign.org

3. This is a “public event.” If you have confidentiality concerns . . . Your names appear on-line in the list of webinar registrants--consider just listing to the audio or to viewing the webinar at a later time, after it is posted at www.incarecampaign.org All webinars are recorded--do not use identifying information when asking questions Participation Guidelines For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

4. Actively participate and write your questions into the chat area during the presentation; we will also have a “pop up” question exercise, and will pause for conversation during the webinar Do not put us on hold Mute your line if you are not speaking (press *6, to unmute your line press #6) The slides and recording of this and other Partners in+care webinars are available for playback and group presentations at www.incarecampaign.org – “Resources” tab Participation Guidelines For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

5. Welcome, Overview, Participation Guidelines - 5 mins Agenda, Learning Objectives, Introductions - 5 mins Partners in+care Refresher, 20 mins Opening the Partners in+care Toolkit, 20 mins The Impact of Retention, 5 mins Wrap-up & Evaluation, 5 mins Conversation opportunities throughout webinar Agenda Bob Tracy, NQC Peer Consultant St. Paul, MN bobtracyconsulting@gmail.com

6. At the end of this webinar you will know . . . How the in+care Campaign and Partners in+care fit together What resources are available in the Partners in+care Toolkit Why it is important to engage peers and consumers in our “push” to improve retention Learning Objectives

7. Partners in+care Refresher Purpose for in+care Campaign The purpose for the in+care Campaign is to improve health and prevention by keeping and getting more people living with HIV/AIDS in care. We are doing this by facilitating local, regional and state-level initiatives to improve retention. Visit www.incarecampaign.org

8. Partners in+care Refresher Five Parts of the in+care Campaign Visit www.incarecampaign.org

9. Partners in+carePurpose Partners in+care Refresher Successful results in HIV care depend upon partnership between consumers and their providers. So does the in+care Campaign.

10. Partners in+care Refresher Purpose for Partners in+care CampaignEngage people living with HIV/AIDS as partners in the in+care Campaign Increase Knowledge Web “hub” Webinars Resources National Network Peer-to-peer exchange Self Care Peer-to-Peer Engage in QI Visit www.incarecampaign.org – “Partners” tab

11. Partners in+care Refresher Pop-up Question How have you been involved with the in+care Campaign? Signed-up for in+care Campaign? Participated in webinars? Worked with a regional coach? Involved with a regional learning group? Signed up for Partners in+care? I’m new. Today is the first. Other? Select all that apply. Visit www.incarecampaign.org

12. Partners in+care Refresher What has Partners in+care offered, to date? • November – Pi+c work group formed • February - Launched Pi+c web site and introduced the Pi+c network * • March – Webinar introducing retention and Pi+c • April – Webinar on self-care and retention • May – Webinar on retention and peer-to-peer outreach & support • June - Introduced the Pi+c Facebook page; exchange tips, stories, information & experiences ** • June – Pi+c Toolkit launch & introductory webinar * Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab ** Send email to incare@NationalQualityCenter.org – “Facebook” in subject line

13. Partners in+care Toolkit Introducing the Pi+C Toolkit A set of resources to reach peers and consumers that are easy-to-find on the Partners in+care web page that you can use to: • Support knowledge about retention • Promote involvement in Pi+c Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

14. Partners in+care Toolkit What’s in the Pi+C Toolkit • “How To” guide • Pi+c awareness and promotional tools • Web resource links • Key articles • Short Powerpoint presentations • Webinar archive Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

15. Partners in+care Toolkit Using the Pi+C Toolkit Getting what you need from the Pi+c web site to take the Pi+c experience beyond the web Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

16. Partners in+care Toolkit Where to find the Pi+C Toolkit www.incarecampaign.org Click the “Partners” tab Open the Pi+c Toolkit Partners in+care Toolkit Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

17. Partners in+care Toolkit Awareness Tools • in+care Campaign video • Promotional flier [PDF] • Palm card [PDF] • Tear sheet [PDF – updated to promote next Pi+c webinar] • Tip Sheet [messages for email, FB & Twitter] Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

18. Partners in+care Toolkit Awareness Tools Have you used any of the Pi+c awareness tools? Tell us how you have used the tools and about your experiences in the chat room. Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

19. Partners in+care Toolkit Resources to Share • Key HIV Terms [HRSA] • Ryan White Services [HRSA] • Living History [HRSA] • HIV self-care [HRSA] • Info about HIV [CDC] • Self Care [The Body] • Consumers & QM/QI [NQC] Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

20. Partners in+care Toolkit More Resources to Share Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502. Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499. Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

21. Partners in+care Toolkit Things You Can Show Short Powerpoint Presentations & Discussion Tools • Pi+c overview • Retention: What It Means for You • Retention & Self-care • Retention & Peer-to-Peer Support • Retention & Consumer Involvement in Quality Management & Improvement Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

22. Partners in+care Toolkit Things You Can Watch Pi+c Webinar Archive • Retention: Partners Make It Happen • It Starts with One: Retention & Self-care • Reaching Out to Share the Benefits of Care: Retention & Peer Advocacy • Other in+care Campaign webinars available @ www.incarecampaign.org Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

23. Partners in+care Toolkit Ways To Connect Pi+c Network • Email notices and updates about Pi+c and in+care Campaign • Provide advice [Pi+c surveys] +Sign up to Be a Partner in Care Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

24. Partners in+care Toolkit Ways To Connect Pi+c Facebook Community • Share tips, stories, experiences & resources • Community of people living with HIV/AIDS and allies • Secure and confidential • Join. Send email to incare@NationalQualityCenter.org – Facebook in subject line

25. Partners in+care Toolkit Ways To Share • Share your experiences. + Tell Us Your Improvement Stories • Share your resources. Send them to incare@NationalQualityCenter.org • Join Pi+c work group. Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit Send email to incare@NationalQualityCenter.org – “Work Group” in subject.

26. Partners in+care Toolkit Raise Your Hand Are you connected with Partners in+care? How many have signed up for the Pi+c network through the Pi+c web page? How many have joined the Pi+c Facebook page? Who wants to join? Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab Send email to incare@NationalQualityCenter.org – “Facebook” in subject line

27. Our Goal What We Want to Change 1/3 to 2/3 of PLWHA in US are not in regular care 17-40% of PLWHA who know status are not in regular care 40% of patients newly diagnosed did not see provider within 6 months

28. Our Goal The Value of Retention • Stay in care / Return to care • Retention –having a routine for seeing your doctor/health care provider on a regular schedule • Doing this persistently – year-after-year-after-year There is a relationship—a seemingly obvious relationship—between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]

29. Our Goal Continuum of Engagement

30. Our Goal Partners in+care: Providers & Consumers Coming Together to Overcome Retention Challenges • Self-care – learning more • Reaching out to others – peer-support, peer navigators, friends and family • “Systems” that work with us by working with them Visit www.incarecampaign.org – “Partners” Tab

31. What We will Accomplish Our Goal Create a network of 1000 consumers ready to be engaged in retention through Pi+c. Identify 100 consumers ready to become Pi+c leaders & advisers. Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab Send email to incare@NationalQualityCenter.org – “Facebook” in subject line

32. Our Goal What We will Accomplish • Share what we know so we all get better at: • Seeing our doctor and HIV care providers on a regular basis • Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits • Making sure we all get the full benefit of care and treatment in order to improve our health

33. Will You Join Pi+c?How Can You Use the Pi+c Toolkit? Visit www.incarecampaign.org - “Partners” tab Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab Send email to incare@NationalQualityCenter.org – “Facebook” in subject line

34. Visit Web / Open the Toolkitwww.incarecampaign.org - “Partners” tab Sign up for Pi+c Networkwww.incarecampaign.org – “Partners” tab Join Facebook Send email to incare@NationalQualityCenter.org – “Facebook” in subject line Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor New York, NY 10007Phone 212-417-4730