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Autopsy and the Genetics Initiative

NCRAD covers reasonable costs for brain autopsies, emphasizing the importance of planning. Learn about autopsy procedures and the annual follow-up process. An upcoming brochure aims to educate families about autopsy planning.

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Autopsy and the Genetics Initiative

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  1. Autopsy and the Genetics Initiative

  2. Autopsy and NCRAD • Since its inception, it has been the policy of NCRAD to cover all ‘reasonable’ costs associated with the brain removal and autopsy of a study subject

  3. Autopsy and NCRAD • Reasonable costs can include: • Transportation of the body • Removal of the brain tissue • Shipment of the brain to NCRAD or other location for examination • Costs of neuropathology

  4. Autopsy and NCRAD • The key to a successful autopsy is planning • Families are typically approached to consider brain donation at several times, including: • during their active participation in the study • during their annual follow-up • Once interested, an autopsy plan is put into place

  5. Elements of an Autopsy Plan • Health status of the subject • Who will assist in making plan • Funeral home arrangements • Site for brain removal • Means to transport body, if necessary • Location for neuropathology

  6. Elements of the Autopsy Plan • Finalize each element • Put all plans into writing • Send a copy of the autopsy plan with all details to all relevant individuals • Family members - Nursing home • Funeral home - Brain removal site • Neuropathology site • Reconfirm all elements of the plan on a yearly basis

  7. Autopsy Brochure • New brochure is being developed which will provide information to families about autopsy planning • Introduces the importance of autopsy • Answers commonly asked questions and concerns • Can be included with a cover letter as part of a mass mailing for annual update

  8. Annual Follow-Up and the Genetics Initiative

  9. NCRAD Annual Follow-Up • NCRAD uses various tools to keep families interested in the project and thereby provide updated information annually • Simple annual update form • Cover letter describing study accomplishments • Regular NCRAD Newsletters

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