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Improving Cancer Tracking Today Saves Lives Tomorrow: Do States Make the Grade?

Improving Cancer Tracking Today Saves Lives Tomorrow: Do States Make the Grade? Shelley Hearne, Dr.PH Executive Director October 20, 2003. Red CDC funded cancer registries – basic implementation Blue : CDC funded cancer registries – capacity building

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Improving Cancer Tracking Today Saves Lives Tomorrow: Do States Make the Grade?

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  1. Improving Cancer Tracking Today Saves Lives Tomorrow: Do States Make the Grade? Shelley Hearne, Dr.PH Executive Director October 20, 2003

  2. RedCDC funded cancer registries – basic implementation Blue: CDC funded cancer registries – capacity building Yellow:NIH’s National Cancer Institute SEER Registries From http://www.cdc.gov/cancer/npcr/index.htm

  3. Do States Make the Grade?

  4. TFAH State Grade Criteria • Degree of state legislative support. This involves financial contribution and laws authorizing a state cancer registry: 10% of grade • Working with local communities to answer questions as they arise: 20% of grade • Linking cancer data with other existing and relevant databases and making this available to researchers: 20% of grade • Data Quality. TFAH based its assessment on criteria set by the 2 cancer registry associations: 50% of grade

  5. TFAH Policy Recommendations • Connect and coordinate with other health databases • Additional $19 million to modernize the registries (electronic reporting, online user friendly, improve “lag time”) • Communities and researchers must have access to registry data, within limits of patient privacy • Move toward real time reporting starting with childhood cancers • Accountability and performance standards strengthened • IOM should issue report with clear suggestions for improvement

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