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Quality Cancer Data Saves Lives

Quality Cancer Data Saves Lives. The Vital Role of Cancer Registrars in the Fight against Cancer. 18 Million. 1.5 million. 67%. Cancer Registries. Statistics Treatment strategies Public health initiatives. Goal.

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Quality Cancer Data Saves Lives

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  1. Quality Cancer Data Saves Lives The Vital Role of Cancer Registrars in the Fight against Cancer

  2. 18 Million

  3. 1.5 million

  4. 67%

  5. Cancer Registries • Statistics • Treatment strategies • Public health initiatives

  6. Goal The ultimate goal of collecting cancer information is to prevent and control cancer and improve patient care

  7. Result Assist physicians in assessing the efficacy of diagnostic and therapeutic methods

  8. Result Aid in the decision making about unmet needs, physician recruitment, space needs, resource allocation, and health planning

  9. Result Respond to local needs through an assessment of referral patterns, cancer trends, and development opportunities

  10. Medical history Diagnosis and prognosis indicators Treatment patterns Cancer recurrence Survival rates Health care coverage Patient eligibility Cancer-related Information

  11. Different Kinds of Cancer Registries

  12. Hospital Cancer Registry

  13. State Cancer Registry

  14. Surveillance Epidemiology and End Results Program (SEER) http://seer.cancer.gov/

  15. National Program of Cancer Registries

  16. Today, NPCR and SEER registries work collaboratively to collect and report cancer statistics on the entire U.S. population.http://www.cdc.gov/cancer/npcr/uscs/

  17. NPCR provides national leadership to Cancer Registries NAACCR Certified State Registries 2011 Gold Silver Black- did not meet certification requirements

  18. CDC: National Standards • CDC has established national standards to ensure the completeness, timeliness, and quality of Cancer Registry data

  19. National Cancer Data Base http://www.facs.org/cancer/ncdb/index.html

  20. How Registries Collect Cancer Data

  21. The techniques used by Cancer Registrars allow for uniform data collection http://www.naaccr.org/

  22. Abstracting Abstracting is converting a patient’s medical information to uniform cancer data

  23. Electronic Medical Records

  24. Cancer Registries have embraced technology

  25. The Flow of Cancer Information: A Case Study

  26. Diagnosis to treatment • Jane Smith learns from her internist that she likely has breast cancer

  27. Diagnosis to treatment • Further tests are completed at the hospital

  28. Diagnosis to treatment • Jane’s doctor proposes a course of treatment

  29. Diagnosis to treatment • Follow-up tests show Jane to be cancer free

  30. Diagnosis to treatment • Jane’s data is added to other SEER and Michigan central Cancer Registry data, and the National Cancer Data Base, where it will go through more quality processes and refinement

  31. Diagnosis to treatment • The Cancer Registrar will regularly follow-up

  32. Cancer Information is Used to Improve Prevention, Research, and Care

  33. Cancer information is used in thousands of ways, including — Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement

  34. Provide outcome information for cancer surveillance http://www.cdc.gov/cancer/npcr/uscs/

  35. Provide information for cancer prevention activities

  36. Allocate resources at local, state, and national levels

  37. Develop educational programs for health care providers, patients, and the general public

  38. Cancer data form much of the body of knowledge used by medical professionals, epidemiologists, policymakers, and public health officials

  39. Minnesota In Minnesota, a rare type cancer caused by asbestos exposure was identified, leading the state to look for increased state funding for occupational-related disease

  40. New York Cancer registry data are now used to educate New Yorkers about cancer risk factors

  41. Cancer Registrars Ensure Accuracy and Privacy

  42. Inaccurate data is useless, expensive, and often harmful

  43. National data is only as good as state and local data Health care providers record patient information and diagnosis Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)

  44. Privacy concerns are paramount to Cancer Registrars

  45. Cancer Registrars: A challenging career requires quality education, and certification

  46. High quality data results from trained specialists: Cancer Registrars

  47. The Cancer Registrar must have comprehensive knowledge about cancer diagnoses, treatment, and information management

  48. Education for Health Information Management Professionals and Cancer Registrars are similar

  49. Hospital-based Registrar’s Role Goes Beyond Data Collection • Cancer Program Management • Cancer Committee Member • Monitor quality of Cancer Program Management • Provide benchmarks for quality comparison

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