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Cross CFAR CAB Collaborative Meeting Philadelphia, PA April 11-12, 2011

Cross CFAR CAB Collaborative Meeting Philadelphia, PA April 11-12, 2011. Institutions Represented. CFARs Baylor/ UT Case Western Reserve University Duke University DC CFAR* Emory University Harvard University New York University University of Alabama at Birmingham

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Cross CFAR CAB Collaborative Meeting Philadelphia, PA April 11-12, 2011

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  1. Cross CFAR CAB Collaborative MeetingPhiladelphia, PAApril 11-12, 2011

  2. Institutions Represented CFARs • Baylor/ UT • Case Western Reserve University • Duke University • DC CFAR* • Emory University • Harvard University • New York University • University of Alabama at Birmingham • University of North Carolina • University of Miami* • University of Rochester* • University of Pennsylvania/ CHOP/ Wistar • University of Washington/FHCRC Non-CFAR • Family Health International (FHI) * Indicates Developmental CFAR

  3. Cross CFAR CAB Meeting April 11, 2011 • 40 attendees from 14 institutions • What participants liked most … “ All of the presentations allowed for questions and answer. Also really appreciate the diversity of the group.” “The CFAR Survey Discussion and the Breakout group reporting/ discussion” “The opportunity to hear about and share the stories of the different CFAR experiences and strategies. Very informative especially for a new CFAR! And lunch was great!  ” “The sessions were structured but loose enough to allow discussion.”

  4. Some of the Expectations…. • Learn about CFAR structure and function • Develop newcomers to be leaders • Meet, learn from, network with other CABs for best practices • Engage in dialogue about important issues • Learn more about research review of protocols, etc

  5. Cross CFAR CAB Meeting – April 11, 2011 • 40 Attendees (44 registered) from 13 institutions • 100 % rated meeting as meeting their expectations • 91% would like to continue on-going dialogue with the other CFAR CABs. • 8 out of 13 CFAR CABs would like to host a future face-to-face Cross CFAR CAB training/meeting/workshop

  6. Cross CFAR CAB Meeting – April 11, 2011 Presentations- Monday Sessions - Welcome and Introductions James Hoxie, MD (Penn CFAR Director) WaheedahShabazz-El (Penn CFAR, CAB Chair) Kevin T. Jones, MPH, Med (HIV/AIDS Prevention Research Division - Getting to Know You: History and Infrastructure of CABs Carol Rogers (Penn CFAR CAB, Vice Chair) - Keeping CFAR CABs Afloat: CAB Coordinators Speak Kate Murray, MPH (University of Washington CFAR CAB Coordinator) - How to Get a Conference Scholarship: Batting 1000 WaheedahShabazz-El (Penn CFAR CAB Chair) - For Community Representatives and Other Non-academics: How Do I Develop An Abstract? Michael Blank, PhD ( Penn CFAR Behavioral and Social Sciences Co-Director) - Building Effective and Meaningful CFAR Community Advisory/ Action Boards - What’s Next?

  7. How to review a protocol training– April 12, 2011 Presentations, Friday Sessions Jonathan Paul Lucas, MPH (FHI) Cheryl Cokley MPH (FHI) - Review of Training Agenda - Training Introduction - CAB Responsibilities - Clinical Trials Terminology - Protocol Content - Protocol Review Questions - Providing Feedback About the Protocol - Training Summary

  8. James Hoxie, MD Welcome (right) Kevin T. Jones, MEd, MPH Facilitator (left)

  9. Group learning (left), Karen Fishbaugh-Cummings, CWRU (bottom left); Breakout group report back NYU Rep, Lorenzo Penn (bottom Right)

  10. There was much that was outstanding about our two days together – the people we met, the discussions we had, etc.  What stood out for me, however, was how every logistical detail was planned and executed perfectly. Thank each of you for your input, your great ideas, your conversation and your friendly involvement during our time together this week. I enjoyed meeting each of you. As I depart this 'City of Brotherly Love', I reflect that I have met many wonderful new brothers and sisters during my time here. We are creatinga family ~ a family of CABs bonded together by shared initiative and motivated by the common dream of changing the landscape of HIV. Thank you again for your many contributions and your continued commitment. What ParticipantS SAID AFTER THEY LEFT… I couldn’t wait to follow-up with you re: my experience at the CROSS CFAR CAB.  It was absolutely worthwhile and wonderful from beginning to end.  This collective forum gave us an opportunity to establish a network of support with existing and developing CABs across the county.  We quickly realized that we shared many commonalities re: strengths and challenges and our respective differences created stimulating and supportive dialogue among us.  We quickly embraced while there are some fundamental similar tenets embodied by all of the CABs, there isn’t a “one size fits all” model. I’m looking forward to being an active participant in this dynamic exchange as we continue to move forward individually and corporately in advancing the HIV research agenda with a vital emphasis on community support, as evident by our many discussions and activities. Again, thank you, thank you, thank you for extending the honor and privilege to represent the UNC CFAR CAB.  It was truly an amazing experience and I’m grateful. 

  11. Jonathan Paul Lucas, MPH, FHI trainer (top left); Some sunning & movement planning (top right); Penn CFAR CAB members getting their certificates of completion (bottom right)

  12. Info sharing at its finest, some creative juices were flowing as well. All Attendees before we departed

  13. Next Steps • COMMUNICATION PLAN - listserv [cross-cfar-cab@googlegroups.com] - blog - newsletter -conference calls [CROSS CAB CALL NUMBER: (712) 338-7506] • SKILL BUILDING - webinars [AnyMeeting.com/CrossCFARCAB1] - face-to face meetings - CAB retreat • INFRASTRUCTURE - create a standardize criteria for CFAR CABs - create a centralized evaluation process for how CABs can evaluate their own effectiveness ( in reaching goals; fulfilling its missions, etc), evaluate their relationship with investigators and University/ CFAR staff • RESOURCES - Nurture new groups who want to establish CFAR CABs - Create a clearinghouse for materials by-laws, committee structures, training • NEXT POSSIBLE HOSTS • Duke at (CFAR Director’s meeting) • Univ. of Washington, Harvard, UPenn, UAB, Baylor/UT, NYU, Rochester

  14. Acknowledgements Penn CFAR Staff • James Hoxie • David Metzger • Michael Blank • Tiffany B. Dominique • David Nadgeman • Evelyn Olivieri Volunteer • Michelle Jones Penn CFAR CAB Education & Training Committee • Carol Rogers • Cynthia Green • Roy Hayes • Jeffrey Jenne • Alison Lin • Brenda Hughes • Bob Schoenberg • WaheedahShabazz-El Facilitators and Trainers Kevin T. Jones, Penn HIV Prevention Research Division Jonathan Paul Lucas , FHI Cheryl Cokely , FHI

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