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Why raise awareness – to save lives?

Why raise awareness – to save lives?. Why raise awareness – to reduce disability?. www.headsmart.org.uk. www.headsmart.org.uk. www.headsmart.org.uk. Acknowledgement. Ms Jo Fen Liu Miss Maya Sussman Dr Sophie Wilne Professor Richard Grundy Professor Colin Kennedy

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Why raise awareness – to save lives?

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  1. Why raise awareness – to save lives?

  2. Why raise awareness – to reduce disability?

  3. www.headsmart.org.uk www.headsmart.org.uk www.headsmart.org.uk

  4. Acknowledgement • Ms Jo Fen Liu • Miss Maya Sussman • Dr Sophie Wilne • Professor Richard Grundy • Professor Colin Kennedy • Professor Jacqueline Collier • Dr William Whitehouse • Dr Gabby Chow • Professor Michel Coleman • Dr Thomas Chu • London School of Hygiene and Tropical Medicine • All Party Parliamentary Party Group • HEADSMART Clinical Champions • HEADSMART Project Team • Jan Dudley - Chair • Julia Trussler • Paul Carbury • Sarah Lindsell • Lucie Clough • Dr Peter Lachman • Ian Phillips • Dr Monica Lakhanpaul • Neil and Angela Dickson • HEADSMART Community Champions and Volunteers

  5. Sustainability

  6. www.headsmart.org.uk 3 into 1

  7. ++ ++++++ Public Awareness Enhance the experience of consultation Professional Awareness ++ Reassure Review Refer

  8. Sustainability

  9. Professional Awareness - Confidence How confident are you in your ability to recognise when a child might have a brain tumour? Low? Intermediate? High?

  10. How confident are you in your ability to recognise when a child might have a brain tumour?

  11. Which of the following symptoms and signs do you think may occur in a child with a brain tumour? Symptom : abnormal head position

  12. HeadSmart Clinical Champions

  13. Symptom Interval by Month of Diagnosis (weeks)(Jan2011-Jan 2012, data extracted 30/01/2012) P25 – Median – P75 Sample size <10 Median Symptom Interval All patients 8.0 weeks (min 0, MAX 398.1) 1.8 months (min 0, MAX 91.6) Pre-launch 9.2 weeks (min 0, MAX 398.1) 2.1 months (min0, MAX 91.6) Post-launch 7.4 weeks (min 0, MAX 363.6) 1.7 months (min0, MAX 83.6)

  14. 30/01/2012 Median Symptom Interval (months)Multi-centre Studies in the UK P25–Median- P75 • Significant difference across 3 cohorts (Kruskal-Wallis test, p<0.01) • No significant difference between pre- vs post-launch (Mann-Whitney U test, p=0.136)

  15. Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England? <1 month 1-2 month 2-3 month 3-4 month 5-6 month >6 month

  16. Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England?

  17. Delayed Diagnosis of Cancer: Thematic Review NPSA March 2010 / NRLS Groups 1 and 2

  18. National Reporting and Learning System (NRLS)

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