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Coping Tools for Caregivers

Caregiving Issues and Sources of Stress. Variable symptomsProcess of an official diagnosisVague informationUnclear diagnosisVague estimates of rate of progression. Caregiving Issues and Sources of Stress. Changes in your partnershipIncreased responsibilitiesCh

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Coping Tools for Caregivers

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    1. Coping Tools for Caregivers The Dementia Conference 2008 March 29, 2008 Sarah K. Lageman, Ph.D. Mayo Clinic, Rochester, MN

    2. Caregiving Issues and Sources of Stress Variable symptoms Process of an official diagnosis Vague information Unclear diagnosis Vague estimates of rate of progression

    3. Caregiving Issues and Sources of Stress Changes in your partnership Increased responsibilities Changed future plans and goals Concern about the future Medical Assisted care needs Finances Safety

    4. Changes in Your Daily Routines Sleep problems Poor eating habits Increased smoking or drinking Less exercise Less recovery time for your own illnesses Less care to your own medical needs

    5. Symptoms of Caregiver Stress Sadness Depression Guilt Grief Loneliness Irritability Frustration Anger Difficulty concentrating and making decisions Insomnia Weight changes Appetite changes Reduced personal care Reduced participation in personally meaningful activities

    6. Coping Skills Diverse sources of support Self Other individuals Groups Mental health professionals

    7. Personal Coping Skills Self-care behaviors Exercising Listening to music, reading Getting massages, taking baths, etc. Participation in meaningful activities Working Hobbies Volunteering Breaks from caregiving

    8. A Support Network of Individuals Family members Supportive Helpful with specific tasks Distant Friends Fun Assistance Problem-solving help Caregiving mentors

    9. A Support Network of Groups Religious or spiritual groups Adult Day Care Centers Support Groups Alzheimer’s Association Association of Frontotemporal Dementia State Departments of Aging

    10. Mental Health Professionals Psychologists Individual Therapy Supportive Cognitive-Behavioral Group Therapy Psychiatrists Social Workers

    11. Topics of Psychotherapy Adjustment Diagnosis Changes in your partnership Problem-solving challenges Initiating change Information about care options Help making and feeling comfortable about decisions

    12. Topics of Psychotherapy Emotional Issues Depression Anxiety Anger Guilt Fear Misconceptions about caregiving Re-development of personal goals

    13. National Resources Alzheimer’s Association www.alz.org or 1-800-272-3900 Search for Chapters in your area Coach Broyles’ Playbook for Alzheimer’s Caregivers: A Practical Tips Guide (www.alzheimersplaybook.com) http://www.alzforum.org for general information about Alzheimer’s Disease

    14. National Resources Alzheimer’s Association http://www.alzforum.org/dis/car/default.asp for caregiving information www.alz.org/carefinder/index.asp for Carefinder, a national tool to help people choose home and residential care providers based on individual needs and preferences

    15. National Resources Alzheimer's Disease Education and Referral Center (ADEAR) at 1-800-438-4380 or http://www.nia.nih.gov/alzheimers National Respite Locator Service 1-800-773-5433 (toll-free) www.respitelocator.org Eldercare Locator 1-800-677-1116 (toll-free) www.eldercare.gov

    16. National Resources National Association of Area Agencies on Aging 202-872-0888 www.n4a.org Meals on Wheels Association of America 703-548-5558 www.mowaa.org National Adult Day Services Association 1-877-745-1440 (toll-free) www.nadsa.org

    17. National Resources Family Caregiver Alliance at 1-800-445-8106 or http://www.caregiver.org/caregiver/jsp/home.jsp Fact sheet on Taking Care of YOU: Self-Care for Family Caregivers (http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=847) Fact sheets on Alzheimer’s Disease and Dementia Handbook for Long-Distance Caregivers 50-State Searchable Resource Map

    18. National Resources For information on day care, in-home care, and hospice care: National Council on Aging at http://www.ncoa.org/ or 202-479-1200 National Association for Home Care and Hospice at www.nahc.org/ National Hospice and Palliative Care Organization at www.nhpco.org/ or 703-837-1500

    19. National Resources The Association of Frontotemporal Dementias http://www.ftd-picks.org/ http://www.ftd-picks.org/?p=caregiver.managing for managing difficult behaviors Lewy Body Dementia Association http://www.lewybodydementia.org/ with links for information and caregiver resources

    20. State Resources Minnesota Department of Human Services http://www.dhs.state.mn.us/main/idcplg?IdcService=GET_DYNAMIC_CONVERSION&RevisionSelectionMethod=LatestReleased&dDocName=Aging for Aging section with Home and Community Services link North Dakota Department of Human Services http://www.nd.gov/dhs/services/adultsaging/ for Adults and Aging Services Family Caregiver Support Program

    21. Library Resources Mayo Clinic on Alzheimer's Disease (Distributed by Kensington Publishing Corp., New York, NY; ISBN 1-893005-22-4 The Best Friends Approach to Alzheimer's Care," by Virginia Bell, M.S.W., and David Troxel, M.P.H. ISBN: 1-878812-35-1 Alzheimer's Disease. Published by the American Academy of Neurology and available from the AAN Online Store at www.aan.com.

    22. Resources Mental Health Professionals American Psychological Association at www.apa.org or 1-800-964-2000 to connect with the referral service of the state psychological association Association for Behavioral and Cognitive Therapies at http://aabt.org/ or (212) 647-1890 Ask about experience with caregiving issues and knowledge about dementias

    23. Challenges Identifying barriers to self-care Initiating changes Small action steps Record behaviors and goals Knowing what changes to try

    24. Develop a Team Yourself Your support network Medical care team members Members from resource agencies for individuals with dementia and caregivers

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