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REPORT FROM CONFIDENTIALITY, ETHICS, PRIVACY AND ACCESS Group A

This report presents key recommendations for setting up committees, educating consumers, establishing patient information roadmap, and regulating ownership of Electronic Health Records (EHR) to ensure privacy, ethics, and access in health information infrastructure.

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REPORT FROM CONFIDENTIALITY, ETHICS, PRIVACY AND ACCESS Group A

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  1. REPORT FROM CONFIDENTIALITY, ETHICS, PRIVACY AND ACCESSGroup A Suniti Ponkshe

  2. KEY RECOMMENDATIONS • Set up a committee / task force to: • Identify potential users of Collaborative Health Information Infrastructure, • Analyze gaps under the current privacy laws, and • Develop policy that addresses uses and disclosures. • Provide balanced education to consumers and providers about privacy risks, safeguards and rights of EHR and collaborative health information network(s) through various activities such as town meetings, TV, Print media, etc. ----- Fund it through foundation grants and Govt. grants.

  3. KEY RECOMMENDATIONS • Establish a patient information roadmap that • Acknowledges the consumer as the individual whose interests and rights are primacy, and • Sets the rules and standards for content, information flow, role-based access and audit control. • Set up a cross-industry group to create a working Regional Health Information Infrastructure privacy model (i.e., practices, guidelines & state laws) --- that addresses how they will interact within their region and across state boundaries

  4. KEY RECOMMENDATIONS • Establish a regulation that will • Assign ownership of the EHR to the consumer, and • Clarify the rights and responsibilities of “ownership” including in the situation of incapacity, guardianship and emergencies. (HHS/CMS) • Controversial • Specifically exclude the use of identified EHR data for individual underwriting or other exclusionary activities for coverage, but allow it for payer-based care coordination activities.

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