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Kansas Division of Early Childhood February 24, 2005

Kansas Division of Early Childhood February 24, 2005. Jean Ann Summers PhD, Beach Center on Disability. Nina Zuna Doctoral Student, Beach Center on Disability. Kerry Lida Doctoral Student, Beach Center on Disability. Family Outcomes: Policy & Practice.

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Kansas Division of Early Childhood February 24, 2005

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  1. Kansas Division of Early Childhood February 24, 2005

  2. Jean Ann Summers PhD, Beach Center on Disability Nina Zuna Doctoral Student, Beach Center on Disability Kerry Lida Doctoral Student, Beach Center on Disability Family Outcomes: Policy & Practice

  3. Individuals with Disabilities Education Improvement Act (2004) Signed into law on December 3, 2004 PART B Appropriations 384,597,408 (up from 2004) Number of children served (7/04) 679,212 PART C Appropriations 440,808,096 (down from 2004) Number of children served (7/04) 272,454

  4. Description of transition services “measurableresults” or outcomes Pre-literacy & language skills EI services based upon peer-reviewed research Initiation, “length”, duration, & “frequency” of services must be reported What’s NEWin the IFSP….

  5. Family directed assessment of resources, priorities, and concerns Services to assist families in meeting child needs Measurable results of child and family progress Services in the natural environment IFSP supports family outcomes through…

  6. IEP team shall consider the academic, developmental & “functional needs” of the child. Include present levels of academic achievement and “functional performance” X Elimination of short-term objectives and benchmarks except for children who take the alternate assessments What’s NEW in the IEP….

  7. Statement of measurable annual goals (academic and fxl) Statement of sped and related services and supplementary aids, based upon peer-reviewed research. Amendments or modifications after IEP is developed can be made w/o convening a meeting if agreed upon by LEA and parents. What’s NEW in the IEP CONT….

  8. Reports to Congress Section 619 funds Including concerns of parents in the their child’s education Use of PBS interventions when appropriate Consider the IFSP to serve as IEP IEP supports family outcomes through…

  9. IDEA Family Services/Supports Part C Family training Counseling & home visits Special Instruction Psychological services Service Coordination Services Transportation Social Work Services Assistive Technology

  10. IDEA Family Services/Supports Part B Family training Counseling & home visits Social Work Services Psychological services Speech Language Services Orientation & Mobility Services Audiology Services

  11. Government Performance and Results Act (1993) APR Program goal: Enhance the development of infants and toddlers (0-3) with disabilities and support their families in meeting their special needs 1 Family Indicator: The percentage of families participating in Part C that report early intervention services increased their capacity to enhance their child’s development. IDEA Program Evaluation-Part C (NEILS data 1998-72% & 2001 73%)

  12. Government Performance and Results Act (1993) APR- Program Goal: Preschool children with disabilities ready to enter school & succeed…. through assisting states in providing special education & related services There are two child Indicators and one teacher certificate indicators ! There are NO specific family indicators !!! IDEA Program Evaluation-Part B

  13. Federal Legislation Program Assessment Rating tool (2002) Evaluates agencies in 4 areas: Program purpose and design 100% Program Management 44% Strategic Planning 29% ? Program Results -0%

  14. Initiates focus groups around child/family outcomes Funds Early Childhood Outcome Center Funds G-SEG (General Supervisory Enhancement Grants) to study the implementation of child/family outcomes KSDE was awarded a grant to study child outcomes Office of Special Education Responds….

  15. Funded by OSEP to develop child & family outcomes Serves as a technical resource to states Conducts research Collaborates with families, researchers, community members on development of outcomes Early Childhood Outcomes (ECO) Center

  16. Understand child’s strengths/abilities/needs Know rights/communicate child’s needs Help child learn and develop Feel they have adequate social support Able to access services/activities in their community ECO Family Outcomes

  17. Relationships Choice A “normal” life Empowerment Connection to the community Importance in the community Family Outcomes: Voices from Families National Center on Outcome Resources - ncor.org

  18. Quotes from NCOR focus groups “How I define quality is in terms of how I define my family relationship, my family role, and how I define what fulfils our need as a family in the community.”

  19. Quotes cont- When you are going to bring supports into my house, into my family, please make them non-invasive… we want to feel like a normal family as much as possible.”

  20. Quotes cont- Parents should be the ones defining what inclusion means.”

  21. Quotes cont- “High quality service does not mean a program… it means building support for the individual… from co-workers, neighbors, people who work in the stores… all the people that my son lives and works with and interacts with every day.”

  22. “Family Quality of Life (Park, et. al, 2003) Parent/Professional Partnerships (Blue-Banning, Summers, Frankland, Nelson, & Beegle, 2004) “Family Community Integration Beach Center on Disability Family Outcomes

  23. Family Comments: Preliminary results from FCI “…my husband would like to participate on sports teams, but he doesn’t want to leave me with the kids …so he doesn’t.”

  24. FCI: Family Comments “…she knows people are staring at her and I had to say something…”

  25. FCI: Family Comments “I couldn’t find one [a church] that would accept my child; I had to drive 18 miles to get this service.”

  26. FCI: Family Comments “A lot of times my older son can not join hobby-based clubs because of my other son’s therapy needs”.

  27. FCI: Family Comments “…finding someone to work with our child with behavior issues is tricky…”

  28. FCI: Family Comments “…a lot of people (referring to other parents of kids with disabilities) don’t like to leave the house because it is way too hard for their child to handle the situation, so instead they have friends over.”

  29. FCI: Family Comments “..nobody right now can do this (attend education courses]; we are interested, but trying to figure it out; there is no solution now.”

  30. FCI: Family Comments “…spending time together as a family is important.”

  31. FCI: Family Comments “..going to dinner at a fancy restaurant would be nice; too many behavior issues now.”

  32. FCI: Family Comments “..just having a break to go shopping or to the movies by myself would be nice..”

  33. Impact of policy on Family Outcomes Impact of practice through IFSP and IEP design and delivery Implications of families’ voices on policy and practice Summary

  34. KERRY LIDA Family and Professional Networks

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