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ANZDATA Session, ANZSN 2013. Stock, flow and direction ANZDATA Audit Haemodialysis prescription Pregnancy after transplant – kids Deceased donor trends Living donor trends Who and What’s next at the registry. Steve Chadban Nick Gray Kev Polkinghorne Melanie Wyld
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ANZDATA Session, ANZSN 2013 Stock, flow and direction ANZDATA Audit Haemodialysis prescription Pregnancy after transplant – kids Deceased donor trends Living donor trends Who and What’s next at the registry Steve Chadban Nick Gray Kev Polkinghorne Melanie Wyld Stephen McDonald Phil Clayton Matt Jose
RRT A&NZ – Jan 2011 Transplant 9,968 Dialysis 13,063 RRT Jan 2010 23,031
RRT A&NZ – 2011-12 2,937 new starts* Transplant 9,968 117 pre-emptive Tx 4% 2,820 new dialysis 96% Dialysis 13,063 *Similar number do not receive RRT. See Sparke et al, AJKD 2012
RRT A&NZ – 2011-12 2,937 new starts Transplant 9,968 + 956 - 248 117 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 248 graft fail Dialysis 13,063 + 3,068 - 839
RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 9,968 + 956 - 248 - 243 117 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 243 death with function 2.4/100 pt yrs 1,844 death on dialysis 14.0/100 pt yrs 248 Dialysis 13,063 + 3,068 - 839 - 1,844
RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 10,433 117 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 243 death with function 2.4/100 pt yrs 1,844 death on dialysis 14.0/100 pt yrs 248 Dialysis 13,448 RRT 2012 23,881 + 3.7%
ANZDATA Registry Annual Report 2012 Figure 1.4
ANZDATA Registry Annual Report 2012 Figure 1.5
ANZDATA Registry – Plans, 2013+ • Aims: • Annual Report 2013 Earlier, better Phil Clayton • Real-time data Efficiency, accuracy Kylie Hurst • KPI, stock and flow Stephen McDonald • Identified data Key dialysis and transplant outcomes – website • Collaborations ANZ, Government, International • Research Maximise output, impact, involvement • NHMRC funding application • Methods: • Funding AOTA, NZ Department of Health, KHA, Amgen • Hardware New interfaces, new database – 80% there • New People Data team: Kylie Hurst, IT ManeeshaKandamby • Epidemiology Fellow: vacancy arising • Steering Committee Chair – Matt Jose • Executive – Clayton and Past SC Chair • Working Groups
ANZDATA Registry – thanks! • Units – patients, doctors, nurses, allied • Data and time • Interest and attendance • Enquiries - >2000 per annum • Feedback • Funders: • Australian & NZ Governments, KHA, Amgen, pharma • ANZSN • ANZDATA stand, ANZDATA Session • Workers within ANZDATA • Executive, Office, Steering Committee and Working Groups
ANZDATA Session, ANZSN 2013 Stock, flow and direction ANZDATA Audit Haemodialysis prescription Pregnancy after transplant – kids Deceased donor trends Living donor trends Who and What’s next at the registry Steve Chadban Nick Gray Kev Polkinghorne Melanie Wyld Stephen McDonald Phil Clayton Matt Jose