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Family carer of dependent person Challenges and best practices in Spain. Jesús Mª Rodrigo Executive Director CEAFA. COFACE Seminar Dependet persons in the European Union: Who cares their family carers? Sofía, 20 October 2009. Alzheimer Disease.
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Family carer of dependent person Challenges and best practices in Spain Jesús Mª Rodrigo Executive Director CEAFA COFACE Seminar Dependet persons in the European Union: Who cares their family carers? Sofía, 20 October 2009
Alzheimer Disease • 8% of people more than 65 years old is afected by dementia, but the disease is not exclusive of ageing • In 2020, 7 million people afected in Spain. In 2050, 100 millIon in the World • Alzheimer Disease is the most frequently cause of dependence
Alzheimer disease afects both who suffers it, and their family carers
The care in the family • The attention is offered mainly in the familiar framewok and seccondary by programmes and public services • The responsability of care fall on women, and particulary on single daughters • The care generates a high economical, social, psychologycal… impact for the carer and the hole family
Positive effects of family care • Dependent person may live in his usual frame, in known atmosphere and with closer people • Prevent to put the dependent person in a residence, reducing public ressources • Improve the quality of life of dependent person and of the rest of family, because familiar relationship is a warranty of an adeccuate attention
Consequences for family carer Personal Social Profesional Economics “Colateral effects” for family carer Physical alterations Psychological disorders Social disorders
The Asociations. A resource of comprehensive care • The AFAS are private non-profit, legally constituted, who work in the field of action for the collective interests of those affected by Alzheimer's disease and their families. • They conduct their activities primarily with volunteers, even though they have paid professionals, complementing efforts and functions
More than 280 associations spread across the Spanish geography, CEAFA integrated, providing, inter alia, the following specific services for all people affected by Alzheimer's disease
Reception and Information Social Care Psychological Care Advice Training
Day Centers Cognitive stimulation for people suffering from Alzheimer managed by AFAS
Spanish Act of Dependency • The Act aims to regulate the basic conditions guaranteeing equality in the exercise of subjective rights of citizenship in the promotion of personal autonomy and care for people in a dependent position (...) by creating a System for Autonomy and Care Unit, with the cooperation and participation of all government and ensuring the General State Administration a minimum of common rights for all citizens in any part of the Spanish State
Thank you very much for your attention www.ceafa.es ceafa@ceafa.es +34 902 174 517