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Preserving a Sense of Self amongst People with Alzheimer’s Disease at the end of their Lives

Preserving Sense of Self amongst People with Alzheimer’s Disease at the End of Their Lives Astrid Norberg Ersta Sköndal University College Umeå University University in Tromsø. Preserving a Sense of Self amongst People with Alzheimer’s Disease at the end of their Lives. De-mentia.

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Preserving a Sense of Self amongst People with Alzheimer’s Disease at the end of their Lives

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  1. Preserving Sense of Self amongst People with Alzheimer’s Disease at the End of Their Lives Astrid NorbergErsta Sköndal University CollegeUmeå UniversityUniversity in Tromsø Preserving a Sense of Self amongst People with Alzheimer’s Disease at the end of their Lives

  2. De-mentia Without soul (mind) (Jenkins & Price 1996)

  3. Unbecoming(Fontana & Smith 1989) De-selfing(Harrison 1993)

  4. Dementia disease is a threat to sense of identity

  5. Lucid momentsRemembersUnderstandsCares(Normann et al 1998)

  6. Human beingPerson with dementia disease

  7. How can we help a person with AD?

  8. Subject SelfPerson

  9. SubjectPainPleasureGriefMeaning

  10. Difficulty localisating, interpreting and expressing feelings(Buffum et al 2007)

  11. Who am I?

  12. Personal identity depending on memory (Parfit 1971, 1984)

  13. Harrés theoryIdentity(Self 1, Self 2, Self 3)

  14. Self 1My perspectiveAnchored in body, place and time,”I wish, I feel, I think”

  15. How can we help the person with AD?

  16. Meeting as a YouBody

  17. I see youI hear you I touch youI speak to you

  18. Preserved sense of Self 1?

  19. Embodied indentity(Kontos 2004)

  20. Communication through body

  21. Self 2My knowledge about myself

  22. My historyMy characteristicsMy opinions etc.

  23. Self-biographical memorywhere we were born, our opinions etc.(semantic) special episodes(episodic)(Westmacott et al 2004)

  24. Life historySemantic memoryEpisodic memoryImplicite memory

  25. Memory of childhood and early adulthood (Addis &Tippett 2004)

  26. Keep historyRecallRecognize

  27. Emotional toneInterpretation based on memory with the same emotional tone (Piefke et al 2003)

  28. IMe (several)

  29. Personal meSpiritual meSocial meMaterial meMoral meEthnic me

  30. God Dead Self Others Objects Nature Activities

  31. How can we help a person with AD?

  32. AmnesiaAgnosiaApraxiaAphasiaetc.

  33. God Dead Self Others Objects Nature Activities

  34. Self 3I as treated by others

  35. The partner co-creating

  36. We co-create each others

  37. How can we help a person with AD?

  38. Communication Relationship(Normann et al 2001)

  39. ConfirmationDignitySignificanceSubjectSelfPerson

  40. PersonRights(dignity, information, konfidentiality, decision)

  41. How can we help a person with AD?

  42. Adapt to the person’s ability

  43. Person THENPerson NOW

  44. God Dead Self Others Objects Nature Activities

  45. Possible selves What you wish to be What you fear to be What you can be (Cotrell & Hooker 2005)

  46. Preserve selfNot show deficits Show strengths

  47. Subject SelfPerson

  48. Experienced by selfObserved by others Expressed by selfExpressed by others Intended by selfInterpreted by self

  49. Human beingPerson with dementia disease

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