1 / 13

Orthopedic Outcomes Measures for NF

Orthopedic Outcomes Measures for NF. Betty Schorry , M.D. Cincinnati Children’s Hospital. PODCI. Pediatric Outcomes Data Collection Instrument Developed by POSNA (Pediatric orthopaedic society of North America) in 1994

dacia
Download Presentation

Orthopedic Outcomes Measures for NF

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Orthopedic Outcomes Measures for NF Betty Schorry, M.D. Cincinnati Children’s Hospital

  2. PODCI • Pediatric Outcomes Data Collection Instrument • Developed by POSNA (Pediatric orthopaedic society of North America) in 1994 • Measure of functional health in children and adolescents with musculoskeletal conditions • Validated on group of 530 pediatric patients and parents • All scales with good – exc. internal reliability (>0.80) • Good-exc. test-retest reliability • Published extensively

  3. PODCI – cont. • Pediatric questionnaire (ages 2-10 years) • Adolescent (self-reported) questionnaire (ages 11-18) • Parent-reported Adolescent questionnaire • Total of 83 – 86 questions • 4 or 5 point Likert scale • Takes 15-20 min. to complete

  4. Scales of PODCI • 1. Upper extremity physical function • 2. Transfer and basic mobility scale • 3. Sports and physical functioning scale • 4. Pain/ comfort scale • 5. Happiness core scale • 6. Global functioning scale • Higher score indicates higher functioning.

  5. Advantages of PODCI • Extensive questionnaire • Valuable for studies where primary assessment involves musculoskeletal system • Tibial dysplasia; scoliosis; paraspinal tumors; motor coordination • DISADVANTAGES of PODCI • Length of questionnaire • Not available for adults

  6. Functional Orthopaedic Measures for NF Studies • Clinical Gait Analysis • Used in some rehabilitation programs; athletes • Uses computerized system with multiple cameras • Marks are placed on different joints • Can calculate kinematic data • Beginning to be used in research

  7. Gait analysis set-up

  8. Data available • Kinematics – 3-dimensional movement of joints • Kinetics - study of forces involved in walking • Can add dynamic EMG data • One study of gait analysis in 12 children with repaired tibial pseudarthrosis (1998) • Could have potential future use in clinical trials of musculoskeletal complications of NF.

  9. Timed 25 Foot Walk (T25FW) • Time taken to walk 25 feet • Represented as time (sec) or velocity (feet/sec) • No learning effect • Used in studies of multiple sclerosis, spinal cord injury, Friedrich’s ataxia

  10. Timed 25 Foot Walk (T25FW) • Endpoints • 20% increase/decrease as clinically significant change • % of subjects with faster walking speed during intervention over baseline

  11. Walking (from approval of ampyra) • Inclusion criteria included the ability to walk 25 feet in 8–45 seconds • The primary measure of efficacy in both trials was walking speed (in feet per second) as measured by the Timed 25-foot Walk (T25W), using a responder analysis. • A responder was defined as a patient who showed faster walking speed for a least three visits out of a possible four during the double-blind period than the maximum value achieved in the five non-double-blind no treatment visits (four before the double-blind period and one after).

More Related