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Patient Navigation Center Disease Impact Overall Report

The Patient Navigation Center has significantly impacted the lives of individuals with psoriatic disease by providing personalized support, access to resources, and assistance in navigating treatment options. Through various interactions, it has seen remarkable growth in assisting patients with emotional well-being, treatment satisfaction, and overall empowerment. Patients' treatment goals and stories from the center showcase the positive influence and support they receive.

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Patient Navigation Center Disease Impact Overall Report

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  1. Patient Navigation CenterDisease Impact Overall Report

  2. Methodology & Background • The Patient Navigation Center served 2,176 unique individuals during its first six months of operation • Patient Navigators assisted patients through 5,252 interactions, comprising phone calls, emails, texts, website live chats, and Skype calls. • The Patient Navigation Center caseload has grown 328% since opening in February 2016 • Health education inquiries have grown 315% compared to the same time period during the previous year (2015)

  3. Gender N= 2,175

  4. Language Spoken N=1,205

  5. Ethnicity n=147

  6. Age N=654

  7. Location: US N=1,310 Top 10 States:

  8. Location: US

  9. Location: International N=2,175 9% of inquiries are international Top 10 non-US countries

  10. Location: international

  11. Psoriasis vs Psoriatic Arthritis N=805

  12. Severity: Psoriasis N=590

  13. Severity: Psoriatic Arthritis N=398

  14. Current Treatment N=1,114

  15. Comorbidities n=786

  16. Education Case Attributes

  17. Impact of Psoriatic Disease on Everyday Life My Psoriatic Disease Affects My Overall Emotional Well-Being N=387

  18. Impact of Psoriatic Disease on Everyday Life I Feel Self-Conscious with Regards to My Psoriatic Disease N=389

  19. Impact of Psoriatic Disease on Everyday Life I Have Physical Irritation From My Psoriatic Disease N=388

  20. Satisfaction with Care and Treatment I am Satisfied with the Effectiveness of My Medication N=193

  21. Satisfaction with Care and Treatment I am Satisfied with the Out-of-Pocket Costs of My Treatment N=383

  22. Satisfaction with Care and Treatment I am Satisfied with the Care I Receive From My Doctor N=393

  23. Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriasis N=390

  24. Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriatic Arthritis N=365

  25. Patient Engagement and Feelings of Empowerment I Feel Confident in My Ability to Maintain a Healthy Lifestyle and Manage My Disease N=393

  26. Patient Engagement and Feelings of Empowerment I Have all the Information I Need to Make the Best Decisions about My Healthcare N=390

  27. Patient Engagement and Feelings of Empowerment I Have the Ability to Participate in Getting the Best Care N=388

  28. Patient Engagement and Feelings of Empowerment I Feel Ownership and Responsibility for My Health N=386

  29. Patient Treatment Goals

  30. Stories from the Navigation Center • Emily • Newly diagnosed with guttate psoriasis • Under a lot of stress • In working with her Navigator, we were able to: • Connect her with a new doctor closer to home for her phototherapy appointments • Coached her through ways of making her phototherapy trips easier (travel with her dog, shopping, finding a park to walk, etc.). • Provided her with disease management and treatment information • Connected her with a volunteer in Psoriasis One to One

  31. Stories from the Navigation Center • Beth • Contacted NPF seeking help in finding a rheumatologist • Has had significant inflammation and pain in her connective tissue and some nail changes in finger and toe nails. • Was diagnosed several years ago with PsA, but recently had the diagnosis removed and treatment suspended • In working with her Navigator, wee were able to: • Help her locate a new rheumatologist who reinstated her psoriatic arthritis diagnosis and created a long-term treatment plan for her • She is very happy with her new care teamand the level of attention they provide to her

  32. Stories from the Navigation Center • Sally • Parent of a teen with psoriasis • Unsatisfied with current treatment • Suspected psoriatic arthritis • In working with her Navigator, we were able to: • Connect her with additional specialists in her area • Provide information about other treatment options and combination treatment plans • Provide her with information about how to get involved with local events in her area to meet other teens living with psoriasis

  33. Stories from the Navigation Center • John • Has severe genital psoriasis • Feeling isolated, discouraged with treatment options • Contacted the Navigation Center for support • In working with his Navigator, we were able to: • Connect him with another volunteer living with genital psoriasis through the One to One support program • Help prepare him to discuss other treatment options with his dermatologist • Coached him through stress management strategies and positive ways to cope

  34. Stories from the Navigation Center • Clara • Has had severe psoriasis all of her life • Negative experiences with health care providers in the past have led to fear and ambivalence about seeking treatment • Currently not treating or seeing a health care provider • In working with her Navigator, we were able to: • Utilize coaching and motivational interviewing strategies to help Clara overcome her anxiety about seeking medical care • Locate a qualified specialist in her area • Clara is now seeing a dermatologist for the first time in many years and is optimistic about treatment

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