An introduction on why the Foundation was established by Robyn Arya & Alan Kohn

1. An introduction on why the Foundation was established byRobyn Arya & Alan Kohn www.mdakf.com.au Page 1 9 July 2008

2. Mission of the Foundation • “To ensure that all children with special needs have the appropriate aids and equipment to support their health and wellbeing, growth and learning.” www.mdakf.com.au Page 2 9 July 2008

3. Why was the Foundation Established • In loving memory of our son Dean • Recognised the need for “top up funding” above the government allocated funds • from our own experiences with Dean • hearing from and knowing families facing ongoing financial difficulties • liaising with disability groups www.mdakf.com.au Page 3 9 July 2008

4. Our Personal Experience • Equipment Dean required • chairs (panda & ladybird) • standing frame • special needs pusher • therapy equipment e.g. exercise ball, sensory box • Cost • out of pocket • Waiting time • average 4 to 12 months www.mdakf.com.au Ladybird seating Standing frame Mountain Buggy Panda chair Page 4 9 July 2008

5. Management of Funds • Money raised is distributed by the Foundation members = Robyn, Alan & Joshua • Based on individual needs of child and family • Preference is given to financially disadvantaged families • Every dollar raised goes directly to the purchase of equipment www.mdakf.com.au Page 5 9 July 2008

6. Purpose of Equipment & Aids • Assist with mobility, support and seating • Promote independence with daily activities • Prevent injury to child and parent/carer(e.g. lifting and transfers) • Strengthen bones, improve muscle tone and prevent deformity (e.g. due to growth) • Enhance wellbeing & minimise hospital admissions www.mdakf.com.au Page 6 9 July 2008

7. Children’s Equipment Needs • Ongoing needs - not just a one off • Early years - specialised seating for the home & car- standing frame & walker • Childhood years- beginning school,- growing taller & heavier e.g. wheelchair, communication devices • Adolescent years - rapid growth - functional skills may change e.g. bigger chair, toilet adaptation www.mdakf.com.au Page 7 9 July 2008

8. Children’s Equipment Needs • Vital that appropriate equipment is: • correctly prescribed • efficiently delivered • to meet a child’s individual and changing needs over time www.mdakf.com.au Page 8 9 July 2008

9. Equipment Expenditure Examples www.mdakf.com.au Page 9 9 July 2008

10. Types of Equipment Wheel Chair $4,430 Hoist & Sling $5,300 www.mdakf.com.au Page 10 9 July 2008

11. Types of Equipment Electric Standing Frame $4,900 Car Hoist & Mods $15,000 www.mdakf.com.au Page 11 9 July 2008

12. Foundation Recipients • Examples of just some of the 28 children and their families the Foundation has supported: • Full purchase of a $6,000 wheelchair for a 13 year old girl from Geelong • $4,000 co-payment towards the purchase of a $14,500 Dynavox Voice Output Communication Aid for a 6 year old boy from New Gisborne • $500 co-payment towards the purchase of a $1,800 body splint for a 10 year old girl from Glen Waverly • $468 co-payment towards the purchase of a $768 Kaye Walker for a 15 year old girl from Hampton • $489 co-payment towards the purchase of a $3,799 shower/commode chair for a 17 year old boy from East Oakleigh • $1000 co-payment towards a $4264 panther wheelchair for a 7 year old girl from Seaford www.mdakf.com.au Page 12 9 July 2008

13. How you can help the Dean Arya-Kohn Foundation • Come along to our fundraisers • Hold a fundraising event • Sponsor a Child with special needs • Ongoing annual support • Corporate sponsorship www.mdakf.com.au Page 13 9 July 2008

14. Thankyou!! www.mdakf.com.au Dean in Panda Chair Dean in Sensory Box Page 14 9 July 2008