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Meaningful Use and Personalized Patient Education: Consumer Health Information Activities at the National Library of Medicine. James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the National Library of Medicine. Disclaimer.
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Meaningful Use and Personalized Patient Education: Consumer Health Information Activities at the National Library of Medicine James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the National Library of Medicine
Disclaimer This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.
Personal Health Records
Personal Health Records • State of the art in PHRs
Personal Health Records • State of the art in PHRs • NLM Personal Health Record
How does it differ from other PHRs? Single web page for efficient data entry Generates input forms “on the fly” Can capture almost any kind of structured data Aims to code all key facts with US standards Intelligent, patient-specific reminders
Personal Health Records • State of the art in PHRs • NLM Personal Health Record
Personal Health Records Electronic Knowledge Resources
Electronic Knowledge Resources • MedlinePlus
MedlinePlus • Consumer & patient health • English & Spanish • Coverage: • Diseases and conditions • Health and wellness • Drugs, herbs, and supplements • Videos, interactive tutorials, etc. • Stringent quality criteria
172 tutorials 78 anatomy videos 112 surgery videos 5 Sp surgery videos 885 English 856 Spanish 15-20 news stories daily ~1,000 drugs 100 supplements 1,445 links to ClinicalTrials.gov >40 languages >250 topics >3,000 links ~ 3,500 encyclopedia articles > 2,000 images
Electronic Knowledge Resources • MedlinePlus • Genetics Home Reference
Genetics Home Reference • Website of genetics information for the public • Currently more than 1,400 summaries • Incidence and prevalence • Gene/disease relationships • Common vocabulary terms, defined • Background information about genetics • Handbook: Help Me Understand Genetics • Glossary of genetics terms
Electronic Knowledge Resources • MedlinePlus • Genetics Home Reference • Clinical Trials.gov
ClinicalTrials.gov Access to data about individual clinical trials 97,835 registered trials from 7,961 Sponsors 2,467 Results entries from 449 Sponsors 43% with associated publications Powerful search tools Users can identify and track trials and outcomes
Electronic Knowledge Resources • MedlinePlus • Genetics Home Reference • Clinical Trials.gov • Infobot
Infobot Augment an EMR with pertinent information from evidence-based resources Provide access to key facts needed to support clinical decision making and evidence based plans of care 39
Electronic Knowledge Resources • MedlinePlus • Genetics Home Reference • Clinical Trials.gov • Infobot
Personal Health Records Electronic Knowledge Resources ? Infobuttons
Infobuttons • Context-specific links out to information resources