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Working with High Risk Women and Children. An Integrated Mother-Child Perspective on FASD Margaret Leslie Dip.C.S., C.Psych.Assoc. Director, Early Intervention Programs Mothercraft/Breaking the Cycle. BTC PARTNERS. MotheRisk - Hospital for Sick Children. Mothercraft.
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Working with High Risk Women and Children An Integrated Mother-Child Perspective on FASD Margaret Leslie Dip.C.S., C.Psych.Assoc. Director, Early Intervention Programs Mothercraft/Breaking the Cycle
BTC PARTNERS MotheRisk - Hospital for Sick Children Mothercraft St. Joseph’sHealth Centre Jean Tweed Centre Toronto Public Health Children’s Aid Society of Toronto Catholic Children’s Aid Society of Toronto
FAMILY HISTORY BTC mothers reported the following: • 51% of their mothers had/have substance use problems • 65% of their fathers had/have substance use problems • 81% were physical abused -- the perpetrator was most likely their mother or their father’s/mother’s partner • 83% experienced emotional abuse -- most likely by their mother, or their father’s/mother’s partner • 67% experienced sexual abuse -- almost 30% of the perpetrators were family members
SUBSTANCE USE HISTORY BTC mothers reported their average age of first use: • Nicotine aged 13.1 • Inhalants aged 13.1 • Alcohol aged 14 • Cannabis aged 15.8 • Hallucinogens aged 15.8 • Amphetamines aged 16.8 • Barbituates/sleeping pills aged 18.2 • Cocaine aged 19.4 • Tranquilizers aged 20 • Crack cocaine aged 21.5 • Heroin aged 21.8 • Antidepressants aged 26.3 • Over the counter drugs aged 26.4
EATING DISORDERS Eating disorders were a problem for 40% of BTC mothers. Of these, • 47% indicated that their eating disorders were active and ongoing • 33% reported that they were bulimic • 29% reported that they were compulsive overeaters • 16% reported multiple eating disorders • 16% reported that they were anorexic
SELF-HARM BEHAVIOURS • 26% of BTC mothers reported that they currently engage in self-harm behaviours, or have engaged in self-harm behaviours in the past
PARTNER ABUSE • 82% of BTC mothers reported a history of physical abuse • 43% of BTC mothers reported that their partners are physically abusive • 29% of BTC mothers reported that their partners are emotionally abusive • 72%% of mothers reported that their partners are substance users • 60.4% of mothers reported that they had good/supportive relationships with their partners, but these same partners were responsible for 40% of the physical abuse and 29% of the emotional abuse
EMOTIONAL/PSYCHOLOGICAL PROBLEMS BTC mothers reported experiencing the following symptoms in the six- month period prior to intake: 87% tension, anxiety or nervousness 76% depression 48.9% fear or phobias 42% amnesia 34% experienced thoughts that someone was trying to harm them 73% sleeping pattern disturbances 67% eating pattern disturbances 35% violent thoughts or feelings 35% thoughts of suicide 21% other emotional/psychological problems 43% currently experiencing flashbacks 43% of mothers reported that they had attempted suicide
TREATMENT HISTORY The majority of BTC mothers (82%)have had previous treatment experience. Of these, • 49% had been treated in a residential program • 47% reported previous self-help treatment • 41.4%% had been treated at detoxification centres • 28% had attended day programs • 35% were previously involved in addiction counselling • 11% had used a hospital treatment program and 9% had been treated with Antabuse/Temposil
POVERTY The yearly income reported by BTC mothers is: 44.3% Less than $9,999 38.3% 10,000-14,999 4.9% 15,000-19,999 4.9% 20,000-29,999 2.2% 30,000-39,999 2.7% 40,000-49,999 2.7% 50,000 or more
Prevention of the primary disability - FASD • Universal Prevention (directed to the general public) • Public awareness campaigns • Alcohol control policies (incl. increased taxation, responsible service) • Beverage warning labels • Selective Prevention (directed to women of childbearing age who consume alcohol) • Screening (T-ACE, TWEAK) • Referral • Brief interventions
Prevention of the primary disability - FASD • Indicated Prevention (aimed at pregnant women who have significant alcohol use problems) through: • Access to comprehensive, respectful, flexible and integrated programs, designed to preventor reduce harms associated with alcohol or other substance use in pregnancy • Attention to the social and economic conditions which influence prenatal alcohol use, incl. • Housing stability • Income stability • Food security • Access to primary health care • Access to prenatal care • Access to women-centred addiction treatment programs • Supportive personal relationships free from violence • Social inclusion
Prevention of secondary disabilities Mental health problems Alcohol/drug problems Disrupted school experience Trouble with the law Inappropriate sexual behaviour Confinement Problems with employment Dependent living Unplanned pregnancies…. Streissguth et al,1996
Protective factors for secondary disabilities • Living in a stable and nurturant home for over 72% of life • Being diagnosed before the age of 6 years • Never having experienced violence against oneself • Staying in each living situation for an average of more than 2.8 years • Experiencing a good quality home from 8-12 years • Having applied for and been found eligible for Division of Developmental Disabilities • Having basic needs met for at least 13% of life • Having a diagnosis of FAS (vs. FAE) Streissguth et al,1996
Prevention of secondary disabilities-- the importance of diagnosis • Assessment and diagnosis requires a multi-disciplinary approach which integrates prenatal history with the medico-physical and neurodevelopmental/behavioural functioning of the child • Confirmation of prenatal maternal alcohol use is required for diagnosis • Diagnosis before age 6 years is a salient protective factor against the development of secondary disabilities • Diagnosis provides a blueprint for intervention
Intervention…… Through practice modifications Safety Caring Dependability/reliability Stability Predictability Advocacy/case management Structure Responsivity/congruence Environmental adaptations Health Justice/Corrections Children’s Services Mental Health Education Income Support Education Housing/Shelter Through policy integration Intergovernmental Cross-departmental