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The Secwepemc Nation Our Beginning / Our Vision Injury Surveillance Cycle ACCISS Background OCAP

Evolving Directions & Initiatives Secwepemc Nation Injury Surveillance & Prevention Program Mary McCullough Three Corners Health Services Society Williams Lake BC Injury Research and Prevention Unit Teleconferencing Series – Thursday, July 16, 2009. Information Overview. The Secwepemc Nation

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The Secwepemc Nation Our Beginning / Our Vision Injury Surveillance Cycle ACCISS Background OCAP

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  1. Evolving Directions & InitiativesSecwepemc NationInjury Surveillance & Prevention ProgramMary McCulloughThree Corners Health Services SocietyWilliams Lake BC Injury Research and Prevention Unit Teleconferencing Series – Thursday, July 16, 2009

  2. Information Overview • The Secwepemc Nation • Our Beginning / Our Vision • Injury Surveillance Cycle • ACCISS Background • OCAP • Project Phases • Years 1-2-3 • Outcomes To Date • Project evaluation • Evolving Directions

  3. Secwepemc Nation

  4. Our Beginning - 2003 • Recognition of the limitations associated with regional, provincial and national level health data • Driven by an interest to collect and manage our own health data • Injury surveillance viewed as a means to address a significant health issue while providing a means to build our capacity to manage our health data.

  5. SYSTEM CHARACTERISTICS Aboriginal Community Centered Injury Surveillance System(ACCISS) COMMUNITY CENTERED

  6. SYSTEM CHARACTERISTICS Aboriginal Community Centered Injury Surveillance System(ACCISS) • COMMUNITY CENTERED • Uses a minimal • dataset approach • Tailored data management processes • (based on individual community needs) • Both ‘paper-based’ & ‘electronic’

  7. WHAT are the circumstances leading to an injury? HOW & WHY are injuries happening? WHEN do injuries happen? WHERE are the injuries happening? WHO is getting injured? Minimal Dataset Approach

  8. Age Date of Birth Gender Community of Injury Community of Residence Date of Injury Time of Injury () box

  9. Minimal Dataset Approach (other data variables) Cause of injury Additionalcircumstances Nature & type of injury Intent of injury Outcome

  10. OCAP Principles - pulls together key principles advocated by Aboriginal people for years • Ownership-a community owns information collectively in the same way as an individual owns his/her personal information (cultural knowledge/information/data • Control-First Nations are within their rights in seeking control over all aspects of research & information management processes that impact them • Access-First Nations must have access to information/data about themselves & their communities regardless of where it is currently held • Possession-identifies the relationship between a people & their information (possession or stewardship) Emerged in 1998 as OCA - by the National Steering Committee of the First Nations and Inuit Regional Longitudinal Health Survey

  11. INJURY SURVEILLANCE CYCLE (focuses on linking knowledge with action)

  12. Secwepemc Injury Surveillance Project Cycle Year - 3 Year - 1 Year - 3 Year - 2

  13. Growing & Evolving Capacity Building Opportunities injury prevention training & action planning integration project ACCISS user manual best-better practices project evaluation advisory input-health data reports & projects knowledge transfer opportunities

  14. Phase Three(Broadening the Scope of the Project) Year-1 Develop data access protocols Facilitate inter-jurisdictional access to services Year-2 Conduct feasibility testing Year-3 Enhance comprehensiveness of injury data Increase knowledge re: health data management Develop model(inter-jurisdictional data management & planning)

  15. Challenges and Roadblocks Role adaptation for community health practitioners Start-up dates Geographic diversity of project communities Sustainability Population sensitivities Data collection points

  16. WISDOM with wisdom comes responsibility StagesofLearning KNOWLEDGE with knowledge comes courage AWARENESS with awareness comes reasoning UNDERSTANDING with understanding comes accountability Elder: Mark Philips Peterborough ON, Turtle Clan

  17. Secwepemc Injury Surveillance ProjectEvaluation Objectives • To identify key implementation barriers & facilitating factors • To gain insights about key project learnings & promising practices • To identify factors related to community readiness to begin implementation of ACCISS • To identify & describe project outcomes • To explore external partnership interests • To explore from a community-based perspective, ACCISS database capabilities & usefulness

  18. CAPACITY BUILDINGVISION: to reduce the burden of injury in our Nation • SHORT • (1-2 yrs) • ongoing programming initiated • knowledge-based planning using injury data • enhanced analysis & report generation skills • community development activities in evidence • INTERMEDIATE • (3-5 yrs) • ongoing programming • active community engagement • policy development • inter-connected initiatives • community-based & Secwepemc program planning established • LONG • (6-10 yrs) • emerging culture of safety • Injury trends actively monitored to evaluate injury prevention strategies & activities • continued impact on the burden of injury • transferred skill sets contributing to improving health, safety & well-being ACHIEVED OUTCOMES (2004-2007) • (initiated) increased awareness in communities about injuries • increased commitment to injury prevention • effective data collection • sharing & use of data

  19. Evolving Directions & Initiatives

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