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Bioethical Challenges for the Rehabilitation Counselor. Bioethical Challenges - Current. Advance Directives Physician Assisted Suicide Reproductive Technologies Prenatal Diagnosis and Selective Abortion. Prenatal Diagnosis and Genetic Counseling. Ethical and Human Rights Concerns.
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Bioethical Challenges - Current • Advance Directives • Physician Assisted Suicide • Reproductive Technologies • Prenatal Diagnosis and Selective Abortion
Prenatal Diagnosis and Genetic Counseling Ethical and Human Rights Concerns
Prenatal Testing • Used to detect genetic disorders during early stages of pregnancy • Common Procedures: • Maternal serum screening • Chorionic Villi sampling • Amniocentesis • Carries risk of procedure-related miscarriage and false pos & neg
Why is it important to detect genetic disorders? • Reproductive Rights • Prevention of Suffering/Quality of Life • Child (wrongful life) • Parent (wrongful birth) • Society • Gives family time to prepare
Why is it inappropriate to engage in prenatal testing? • Who is qualified to define quality of life? • Those without disabilities believe far greater suffering than those with disabilities • Quality of life is related to more to societal response than to the disability itself • Parents may feel coerced to do their part to “stamp out birth defects” (Moral responsibility to avoid preventable disease)
Why is it inappropriate to engage in prenatal testing? • Everyone has the right to exist • Child’s future right to autonomy is compromised by upholding parental right to autonomy • Slippery Slope • Discrimination vs. PWD • Selective abortion based on other undesirable characteristics – “Made to order” children • Perpetuates neg. attitudes toward disability • Better not to be born than to have a disability
Why is it inappropriate to engage in prenatal testing? • Belief that genetic counselors and physicians are biased toward selective abortion • General lack of knowledge about disability • Must make decision quickly before fully informed due to increased medical risk as pregnancy advances
Bioethical Challenges – Into the Future • Genetic Engineering • Cloning