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Linking Data to Enhance EHDI Outreach Efforts in Massachusetts

Linking Data to Enhance EHDI Outreach Efforts in Massachusetts. Massachusetts Department of Public Health Penny Liu, Sarah Stone, Janet Farrell March 3, 2005. Snapshot of Massachusetts. 81,000 births per year 53 birth hospitals/centers 26 state-approved Audiologic Evaluation Centers (AECs)

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Linking Data to Enhance EHDI Outreach Efforts in Massachusetts

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  1. Linking Data to Enhance EHDI Outreach Efforts in Massachusetts Massachusetts Department of Public Health Penny Liu, Sarah Stone, Janet Farrell March 3, 2005

  2. Snapshot of Massachusetts • 81,000 births per year • 53 birth hospitals/centers • 26 state-approved Audiologic Evaluation Centers (AECs) • 70 Early Intervention (EI) programs • All children with hearing loss are eligible for EI services

  3. Childhood Hearing Data System • State-developed system • Data support for • monitoring progress • identifying gaps • Case management • Collaboration capacity

  4. CHDS: Data Sources EBC Legal/Demographic Medical/Confidential Hearing Screening Audiologic Evaluation Procedures Type/Degree of Loss Risk Indicators CHDS Family Intake Follow-up/Referral Early Intervention Medical Home EIIS

  5. MA Accomplishments • 99% screening rate* • 1% refer rate* • 86% of the DNP received diagnostic evaluation** • 11% “true” lost to follow up • 3% others (e.g., non-consents, evaluated at non-AECs) • 71% of those with hearing loss enrolled in EI • * Data are based on birth cohort 2002-2004. • ** Data are based on the state-approved AECs reports only.

  6. Strategies to Success • Passage of newborn hearing screening law • Establishment of Advisory Committee • Amendment of birth facility licensure regulations • Development of guidelines for birth facilities and diagnostic centers • Development of outreach program

  7. Lost-to-Follow-Up 2002-2004, MA* * Lost to follow up is defined as those who did not pass the screen and did not receive a diagnostic evaluation. Data exclude non-consents, “sealed” records, and non-AECs evaluations.

  8. Lost-to-Follow-Up MA vs. US* * US data are based 2001data reported by 27 states. MMWR 52 (41):981-984. MA data are based 2002-2004 birth cohort, excluding non-consents, “sealed” records, and non-AECs evaluations.

  9. Lost-to-Follow-Up in MA*by Laterality of Referral aOR** = 1.23 (0.91, 1.64) N = 696 N = 1,715 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, maternal age, race/ethnicity, education, preferred language, health insurance, and residential region.

  10. Lost-to-Follow-Up in MA*by Maternal Education aOR** = 1.71 (1.21, 2.42) N =388 N = 2,023 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, preferred language, health insurance, and residential region.

  11. Lost-to-Follow-Up in MA*by Health Insurance aOR** = 2.68 (1.93-3.71) N = 1,400 N = 787 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, education, preferred language, and residential region.

  12. Lost-to-Follow-Up in MA*by Residential Region aOR** = 3.48 (2.20-5.50) N = 112 N =2,299 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, education, preferred language, and health insurance

  13. From Data to Action • Educate providers on the importance of follow-up • Collaborate with other state programs and supporting services to reach out to high-risk families • Improve communication with hospital social service departments and other care coordination for families

  14. Acknowledgement • Nancy Wilber, Principal Investigator • Martha deHahn, Parent Outreach Specialist • Jessica MacNeil, Epidemiologist • Amy DeCoste, Outreach Specialist

  15. Massachusetts Universal Newborn Hearing Screening Program http://www.mass.gov/dph/fch/unhsp/index.htm Newborn.Hearing@state.ma.us 617-624-5959

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