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Learn how to navigate the healthcare system and make informed decisions as a family caregiver for Alzheimer's patients. Gain insights from clinicians and others who have experienced similar challenges.
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Your Role in Translating Knowledge to Practice Elizabeth Lusk & Sarah Clark Canadian Dementia Resource and Knowledge Exchange Presentation at the 26th Alzheimer’s Disease International Conference Toronto CANADA l Sunday March 27th, 2011
Acknowledgements • Public Health Agency of Canada • Canadian Dementia Resource and Knowledge Exchange (CDRAKE) • Alzheimer Knowledge Exchange (AKE) • Partnerships with the Alzheimer Societies
Dir. Robert Kenner. Writ. Robert Kenner, Elise Pearlstein, Kim Roberts. Perfs. Gary Hirshberg, Michael Pollan, Troy Roush, Joel Salatin, Eric Schlosser. 2008. DVD. Magnolia Home Entertainment, 2009.
key research development that needs to get into the hands of clinicians
clinicians who have developed an exceptional practice-tool that would support family decision making
family caregiver sharing their story navigating our healthcare system so others can learn from their experience and perhaps have a better one
Knowledge Inquiry Tailoring Knowledge Synthesis Products/ Tools Monitor Knowledge Use Select, Tailor, Implement Interventions Evaluate Outcomes KNOWLEDGE CREATION Assess Barriers to Knowledge Use Sustain Knowledge Use Adapt Knowledge to Local Context Identify Problem Identify, Review, Select Knowledge
When Ideas Have Sex • TED Global 2010, Filmed July 2010 • Matt Ridley • How cognitive surplus will change the world • TED @Cannes, Filmed June 2010 • Clay Shirkey
The Dragonfly Effect: Small Acts Lead to Big Change • Jennifer Aaker & Andy Smith • Predictably Irrational • Dan Ariely • Made to Stick • Chip and Dan Heath • The Rational Optimist • Matt Ridley
“I am finding it difficult still being his "daughter" and not a "parent".
“I think you will always be the daughter, but your role as a daughter will be changing. Your parent has a history and part of it is your parent/daughter relationship. Look at what your parent can and can not now do and help him out along the way. I hope that helps” “Thank you, I appreciate the advice. It is tough to remember that at times, but it is important to do.”
“Part of the problem with early onset Alzheimer's is that the majority of available services are geared to seniors... try to solicit help from his current network of friends. He needs to know that he is still valuable to everyone despite his cognitive challenges. You will always be his daughter, even if you are taking over some of his responsibilities.”