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Pulmonary Medicine Health Policy Summit April 9, 2013 Washington, DC

Research to Help Patients and Providers Use Evidence for Decision Making: The Patient-Centered Outcomes Research Institute. David H. Hickam, MD MPH Director, Program on the Assessment of Prevention, Diagnosis and Treatment Options Patient-Centered Outcomes Research Institute (PCORI).

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Pulmonary Medicine Health Policy Summit April 9, 2013 Washington, DC

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  1. Research to Help Patients and Providers Use Evidence for Decision Making: The Patient-Centered Outcomes Research Institute David H. Hickam, MD MPH Director, Program on the Assessment of Prevention, Diagnosis and Treatment Options Patient-Centered Outcomes Research Institute (PCORI) Pulmonary Medicine Health Policy Summit April 9, 2013 Washington, DC

  2. Goals of Presentation Give a brief history of PCORI. Review PCORI’s funding programs. Explain types of projects that may be suitable for PCORI funding.

  3. Purpose of PCORI – The Affordable Care Act “The purpose of the Institute is to assist patients, clinicians, purchasers, and policy-makers in making informed health decisions by advancing the quality and relevance of evidence concerning the manner in which diseases, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed... Purpose Of PCORI Source: Affordable Care Act. Subtitle D—Patient-Centered Outcomes Research. PUBLIC LAW 111–148—MAR. 23, 2010.

  4. 2012 2013 2014 2015 $150,000,000* $300,000,000 $500,000,000 $500,000,000 $500,000,000 PCORI Funding – Approximate . . . . 2019 * 20% of this amount goes to AHRQ/HHS each year for dissemination and capacity-building

  5. National Priorities and Research Agenda 5

  6. PCORI Funding Announcements (PFAs) Based on PCORI’s five research programs Remain “broad” with respect to interest in any condition, as well as cross-cutting questions Point out interest in patients with rare diseases Emphasize outcomes that matter to patients

  7. PCORI Methodology Standards 7

  8. Patients Engaged in Reviewing Research Applications Patients and other relevant stakeholders must be included as members of research teams and involved in all aspects of the project - from planning to dissemination Applications are evaluated and scored on patient and stakeholder engagement in the review process 50% of review panels are either patients or other key stakeholders.

  9. Assessment of Prevention, Diagnosis, and Treatment Options • Comparative clinical effectiveness research compares the effectiveness and safety of preventive, diagnostic, and treatment options to create a foundation of information for personalized decision-making. • The research should offer substantial potential that the results will lead to: • Change in clinical practice. • Better decisions. • Better patient outcomes.

  10. Assessment of Prevention, Diagnosis and Treatment Options 10

  11. Potential Opportunities for PCORI Funding of COPD Research 11

  12. Addressing Disparities Research Areas of Interest

  13. Addressing Disparities Research Areas of Interest

  14. Improving Healthcare Systems Research Areas of Interest • .

  15. Requirements of All PCORI Funding Applications 15

  16. Some Projects are Outside of PCORI’s Priorities 16

  17. Two Distinct (Complementary) Approaches Emerge PCORI National Workshop toAdvanced Use of Electronic Data July 2-3, 2012 Clinical Data Networks Patient-Powered Research Networks

  18. Conclusions PCORI will fund a large number of new projects in 2013-15. Successful applications will: • Evaluate comparisons among clinical strategies. • Examine patient centered outcomes. • Engage patients and stakeholders.

  19. Join Us at PCORI.org

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