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Carla Walker, OTR/L Program Director Kerri Morgan, OTR/L Principal Investigator

Pass It On Center for Demonstrations of AT Reuse Grantees Data Collection Systems and Outcomes May 25, 2007. Carla Walker, OTR/L Program Director Kerri Morgan, OTR/L Principal Investigator. AT Reutilization Program for Independent Living. Program Director Staff Occupational Therapist

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Carla Walker, OTR/L Program Director Kerri Morgan, OTR/L Principal Investigator

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  1. Pass It On Center for Demonstrations of AT Reuse GranteesData Collection Systems and OutcomesMay 25, 2007 Carla Walker, OTR/L Program Director Kerri Morgan, OTR/L Principal Investigator

  2. AT Reutilization Program for Independent Living

  3. Program Director Staff Occupational Therapist Distribution Coordinator Repair Technician Principal Investigator Statistician Data Manager Program Staffing

  4. Research Programs & Services

  5. Collaborations • Primary: 4 Regional Independent Living Centers and 1 International Organization • Secondary: State Programs, Community Organizations, Rehabilitation Facilities

  6. AT Reutilization Program for Independent Living • Purpose To increase access to assistive technology devices and services for people with disabilities in the St. Louis metropolitan area

  7. Grant Activities • Collect, sanitize, evaluate, repair, and distribute reutilized assistive technology, ensuring proper fit to person • Devices currently include: • Mobility devices • Positioning aids • Recreational devices • Exercise equipment • Daily living aids

  8. Grant Activities • Address education and outreach needs, clinical service processes, build a regional network of community collaborators • Expand types of Reutilized AT • Seek Self-Sustainability

  9. Types of Data Collected • Inventory Data • devices donated, sanitized, evaluated repaired, distributed • Consumer Data • Demographics • Clinical Evaluation/Training • Longitudinal Data (outcomes)

  10. Inventory Data Collected • Equipment Donations • Donor demographics (i.e. name, address, phone number etc.) • Type of equipment being donated • Sanitization • Cleaning Checklist • Disinfected • Cover washed • Axles cleaned

  11. Tips/grips Rear tires Anti-tippers Wheel locks Push button Caster tires Bearings Front Riggings Upholstery Axles/Axle Plates Positioning devices Arm Rests Manual Tilt/Recline Cushion/Back Inventory Data – Equipment Evaluation14 Point Check

  12. Consumer Data Collected • Demographic information on recipient (i.e. address, phone number, Medicaid recipient) • Fit to person/Clinical Evaluation • What type of mobility device, if any, do they use now? • What device is the person interested in and what are they planning to use the device for? • What is the person’s weight, height and diagnosis? • Reported seat width and depth/Measurement of seat width and depth • How will the device fit into their environment (vehicle, home, caregiver, and special considerations) • Payment plan established or donation

  13. Consumer Data Collected • Training • How to use the device (i.e. turn on/off, tilt/recline, move arm/leg rests, disengage motors, wheel locks, height/length adjustment etc.) • How to charge the device • How to fold or break down the device for storage or transportation • How to clean and care for the device • Safety with the device

  14. Layout

  15. Skills Course • Includes • Curb Cuts • Stairs • Ramps • Curbs • Carpet • Gravel

  16. Ramp 1:12 Stairs Ramp 1:20 3” curb Potholes

  17. Turning Radius

  18. Uses of Skills Course for Reutilized or New AT • Evaluation of Skills • Training of Skills • Demo equipment (vendor loans or reutilized) • Modify/adjust equipment

  19. Ramp With and Without Training

  20. National Task Force Topics:Jeremy Buzzell, Office of Special Education and Rehabilitation Services Atlanta GA, May 8-9, 2007 • “Appropriate Re-use”: safe for consumers, results in positive outcomes for consumers, and is environmental friendly • “Effective Re-use”:meets needs of consumers, cost-savings, sustainable, positive or neutral effect on AT field • “Benefits of Re-use to Consumers": receipt of AT, cost savings, and clinical outcomes

  21. Next Steps: Beyond Outputs to Outcomes • Expand Clinical Services • skills training & evaluation for AT-Reutilization • Implementing outcome measure for AT-Reutilization

  22. WHAT ARE OUTCOMES? Measurable Used for Program Evaluation and Continued Quality Assurance/Improvement Indicators of whether the effects of the program are what was intended (i.e.. improved community participation, independent living) Outcomes WHY OUTCOMES? • Abandonment • Safety • Effectiveness • Appropriateness • Measure Impact on QOL/Participation • Consumer Feedback

  23. Steps in Developing Outcome Measures of Participation • Interviews • Focus Groups • Pilot Telephone Interviews • Mailings • Internal Consistency & Test/Retest reliability Funded through Centers of Disease Control and Prevention and National Institute on Disability and Rehabilitation Research Developed by: David B. Gray Ph.D. and Holly Hollingsworth, Ph.D.

  24. Previous Uses of Outcomes • Personal Assistance Services (NIDRR) • Evaluation of CDPAS program • Mobility devices (NIDRR) • Measurement of participation differences among individuals using power & manual wheelchairs • Fitness & Exercise (MFH) • Participation and health changes related to wellness and exercise programs • Employment (NIDRR) • Evaluation of individuals with disabilities that are employed

  25. PARTS Purpose: Measurement of an individual's participation in major life activities Format: Paper and Computer based. Web accessible 20 activities, approximately 20 minutes Output: Scoring of the PARTS consists of an overall participation score, a participation score for each of the six domains and component scores for temporal, evaluative, health-related limitations and environmental support domains.

  26. PARTS Participation Domains: 1. Self Care 2. Mobility • Dressing • Bladder Care • Bathing • Bowel Care • • Meals • Moving Inside Home • • Leaving Home • • Taking Vacation 4. Interpersonal Interactions and Relationships 3. Domestic Life • Work Inside Home • Exterior maintenance • Parenting • Intimacy 5. Major Life Areas Domain 6. Community, Social & Civic Life Domain • • Employment • Volunteering • Managing Money • • Community Activities • Religious Activities • Active Recreation • Leisure • Socializing

  27. Participation as Complex Construct PARTICIPATION Temporal: Frequency Time Taken Limitations: Health Related Evaluative: Importance Choice Satisfaction Support: Assistance from Others Assistive Technology

  28. High Moderate Low

  29. Next Steps:Outcome Measure Implementation • Focus Groups: Recipients of Re-utilized Equipment evaluate proposed measure domains (self-care, mobility, domestic life, interpersonal interactions/relationships, community, social & civic life, other) • Program Evaluation/Proposed areas for improvement • Determine Longitudinal Design • Provide Access to Outcome Measure for AT-Reutilization to other programs

  30. Questions? Thank-You! Contact Information • cwalker@paraquad.org • morgank@msnotes.wustl.edu

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