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UNAIDS Extended MERG Workshop Subnational and Concentrated Epidemics Geneva Oc tober 28, 2004. Paul De Lay Director, Evaluation UNAIDS. Summary and Next Steps ART patient and program monitoring. ISSUES: Linking patient monitoring and program monitoring-seeking duplication!!
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UNAIDS Extended MERG WorkshopSubnational and Concentrated EpidemicsGenevaOctober 28, 2004 Paul De Lay Director, Evaluation UNAIDS
Summary and Next StepsART patient and program monitoring ISSUES: • Linking patient monitoring and program monitoring-seeking duplication!! • Concerns about complexity and density of data. Need more field experience. • Too much data vs not enough (drug procurement/good quality clinical care) • What are costs of this? • Similarities/dissimilarities with TB, and “true” chronic diseases • TB invested in vertical staffing • Mobile patients • Concerns about staffing and training • Assigning responsibilities, such as data aggregation and analysis
Summary and Next StepsART patient and program monitoring ISSUES: • Public versus private services-will this work for both? • Confidentiality • Especially in concentrated epidemics, ? get info on modes of transmission, etc • This data set contains early warning signs for ARV resistance (adherence, stockouts, changing regimens, deaths)
Summary and Next StepsART patient and program monitoring ISSUES: • Evaluation of projects (Track One proposal) • Harmonizing 3X5, PEPFAR, Track One (Indicators, reports, reporting timelines, etc) • Pt clinical monitoring, health facility, subnational, national-what do we need? • Standardizing demographic data, especially age cohorts (0-2, 3-4,5-14, 15 and above) • ? Value of CD4 and weight gain (other laboratory and clinical) for program monitoring • Need long term survival • Program management requires #staff per pt, staff trained, coverage, costs
Summary and Next StepsART patient and program monitoring ISSUES: • Need start-up, current, survival, coverage, % on first line and second line Rx (How much of this can be done at subnational levels) • Need to cap national level indicators • Balance the need to provide guidelines and the need to learn and revise • Need to draft an “operations manual” based on the draft operational framework (May need two versions-one to organize technical issues and one for country guidance. Consider including in the “Fundamentals” document)
Summary and Next StepsART patient and program monitoring ISSUES: • A lot of good work has been done to build on... • Now the work needs to focus on the country level