Retention: Partners Make It Happen

1. Retention: Partners Make It Happen March 22, 2012 and March 29, 2011 For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

2. Welcome & IntroductionGround Rules for Webinar Participation Welcome This is a “public event.” If you have confidentiality concerns . . . Your names appear on-line in the list of webinar registrants--consider viewing the webinar at a later time, after it is posted at incarecampaign.org, or simply listening to the audio All webinars are recorded--do not use identifying information when asking questions For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

3. Welcome & IntroductionGround Rules for Webinar Participation Actively participate and write your questions into the chat area during the presentation Do not put us on hold Mute your line if you are not speaking (press *6, to unmute your line press #6) Slides and other resources will be available on our website at incarecampaign.org For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

4. Welcome & IntroductionAgenda Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins The Importance of Retention, 15 mins Opportunities to Improve Retention, 10 mins Partners in+care Overview, 10 mins Q & A opportunities throughout webinar

5. At the end of this webinar, you will know . . . What is retention and why is it important Some of the challenges to retention and how they can be overcome How to get involved as a partner in the in+care campaign Welcome & IntroductionLearning Topics

6. Welcome & IntroductionIntroduce Guests Michael Hager, NQC Dr. Anna Huang, HRSA/HAB John Sapero, Maricopa Co. Ryan White Program Part A [Phoenix, AZ] Bob Tracy, NQC peer consultant [Saint Paul, MN]

7. In+care Campaign Overview Purpose The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.

8. In+care Campaign Overview National Campaign • Regional, state and local • Ryan White grantees and providers; all parts • Partners – people living with HIV/AIDS and their allies

9. In+care Campaign Overview 5 Parts

10. In+care Campaign Overview Get the Toolkit www.incarecampaign.org +request welcome toolkit

11. In+care Campaign Overview Additional Questions: Contact us a info@incarecampaign.org Visit Web site: www.incarecampaign.org

12. In+care Campaign’s Focus on RetentionWhat is Retention? • Stay in care / Return to care • Retention –having a routine for seeing your doctor/health care provider on a regular schedule • Doing this persistently – year-after-year-after-year

13. In+care Campaign Focus on RetentionWhere does it fit? Continuum of Engagement

14. In+care Campaign’s Focus on RetentionRetention – It Needs Our Attention 1/3 to 2/3 of PLWHA in US are not in regular care 17-40% of PLWHA who know status are not in regular care 40% of patients newly diagnosed did not see provider within 6 months Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.

15. In+care Campaign Focus on RetentionRisk of Poor Retention • Less likely to benefit from HIV drug therapies or to be adherent • Experience more illnesses requiring hospitalization. • Trouble managing transmission risk. • Survival prospects are worse. Why do we need to be concerned about people not being in regular HIV care? Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.

16. In+care Campaign Focus on RetentionBenefits of Good Retention What are the benefits of being in regular HIV care? • Likely to have better health outcomes [improved CD4 count, suppressed viral load, fewer hospital admissions or emergency room visits] • Greater life expectancies. Simply “showing up regularly” can improve health and survivability. Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.

17. In+care Campaign Focus on RetentionWe Need to – Want to Do Better The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.

18. In+care Campaign Focus on Retention Additional Questions: Contact us a info@incarecampaign.org Visit Web site: www.incarecampaign.org

19. Challenges to RetentionWhat Research Tells Us • Retention Challenges • Do not feel sick • “Life” gets in the way • Other health issues • Little experience with routine health care • Not enough help • Clinic/system too complex • Processes are confusing • Not helpful at clinic Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

20. Challenges to RetentionWhat Experience Tells Us • Real Life Observations – • “I’m not so sick. I don’t need to see a doctor, yet.” • “I know I have an appointment but then I just can’t get there because I don’t have a way to get there.” • “It just felt weird. They really don’t understand me at my clinic. I didn’t feel comfortable.”

21. Challenges to RetentionHow Can They Be Overcome • Self-care – learning more • Reaching out to others – peer-support, peer navigators, friends and family • Tools – a ride, a meal, help with housing • “Systems” that work with us by working with them Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

22. Partners in+carePurpose Successful results in HIV care depend upon partnership between consumers and their providers. So does the in+care Campaign.

23. Partners in+care Overview Increase Knowledge Self Care Peer-to-Peer Engage in QI Web “Hub” Nat’l+Network Webinars Exchange/Engage

24. Partners in+care Web Hub www.incarecampaign.org Click the Partner Tab

25. Partners in+care Web Hub www.incarecampaign.org

26. Partners in+care Webinar Series • Retention: Be the Ones to Make It Happen – March 29 [repeat session] • It Starts with You: Self-care and Retention – April 19 • Sharing the Benefits of Care: Reaching Out to Others – May 22 • Making Retention Easier: Creating Systems that Work – June 29 Visit www.incarecampaign.org for schedule and information about participating in these webinars.

27. Partners in+care What We will Accomplish Create a network of 1000 consumers ready to be engaged in retention and QI. Identify 100 consumers ready to become QI leaders.

28. Partners in+care What We Will Accomplish • Share what we know so we all get better at: • Seeing our doctor and HIV care providers on a regular basis • Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits • Making sure we all get the full benefit of care and treatment in order to improve our health

29. Partners in+care What We Will Accomplish - Next Promote / Recruit Partners Promote / Participate in Webinars

30. Partners In+care Campaign

31. Sign up to be a Partner! Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor New York, NY 10007Phone 212-417-4730 incare@NationalQualityCenter.orgincareCampaign.org