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Universal Declaration on Bioethics and Human Rights

Universal Declaration on Bioethics and Human Rights. 1997. 2003. 2005. Universal Declaration on Bioethics and Human Rights. standard-setting actions. October 2001: Roundtable Ministers of Science. “examine the possibility of developing … a universal instrument on bioethics…”.

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Universal Declaration on Bioethics and Human Rights

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  1. Universal Declaration on Bioethics and Human Rights

  2. 1997 2003 2005 Universal Declaration on Bioethics and Human Rights standard-setting actions

  3. October 2001: Roundtable Ministers of Science “examine the possibility of developing … a universal instrument on bioethics…” October 2001: 31st General Conference invite the DG to submit the technical and legal studies undertaken regarding the possibility of elaborating universal norms on bioethics 2002 – 2003: IBC feasibility study Report on the Possibility of Elaborating a Universal Instrument on Bioethics (June 2003) October 2003: 32nd General Conference standard-setting actions

  4. The Mandate The General Conference, “considers that it is opportune and desirable to set universal standards in the field of bioethics with due regard for human dignity and human rights and freedoms, in the spirit of cultural pluralism inherent in bioethics;” “invites the Director-General to continue preparatory work on a declaration on universal norms on bioethics, by holding consultations with Member States, the other international organizations concerned and relevant national bodies, and to submit a draft declaration to it at its 33rd session.” 32nd Session of the General Conference of UNESCO - 200332 C/Resolution 24

  5. Towards a declaration on universal norms on bioethics QUERIES AND QUESTIONS • what is universal: norms or declaration? • norms or principles? • domain of bioethics • focus on human beings (moral object vs subject) • which general principles? • specific issues: increasing controversy • which stakeholders: States, scientists, professionals etc Social issues health care environment

  6. Procedure Three main phases: 1. Pre-drafting consultation on the scope and structure January 2004 – April 2004 2. Drafting process April 2004 – January 2005 3. Finalization January 2005 – September 2005

  7. Phase 1: Pre-drafting consultation December– April 2004:Determination of a timetable 169th sessionExecutive Board January – April 2004: Broad consultations on the scope and structure of the future declaration Written consultation with Member States questionnaires sent to 190 Member States: 67 returned (from all regions) - aims and scope of the declaration - structure of the declaration - content of the declaration 2. Extraordinary Session of IBC (27-29 April 2004)

  8. Extraordinary Session of IBC(Paris, 27-29 April 2004) Intergovernmental Organizations Food and Agriculture Organization of the United Nations (FAO) World Intellectual Property Organization (WIPO) United Nations University (UNU) The Arab League Educational Cultural and Scientific Organization (ALECSO) Organization for Economic Cooperation and Development (OECD) Council of Europe European Commission Non Governmental Organizations World Medical Association (WMA) Human Genome Organization (HUGO) International Council for Science (ICSU) Disabled People’s International (DPI) International Association of Bioethics (IAB) National Bioethics Committees Japan New Zealand Korea Tunisia Egypt France Portugal United States of America United Kingdom Republic of Côte d’Ivoire Republic of Congo Russian Federation Croatia Mexico Dominican Republic Around 200 participants from 70 countries

  9. Phase 2: Drafting process April 2004 – January 2005 Public drafts on website 1st outline: June 2004 2nd outline: July 2004 3rd outline: August 2004 4th outline: December 2004 • 6 Meetings of Drafting Group (members of IBC) • UN Inter-Agency Committee • June and December 2004 • 3. National and regional consultations • 4. 11th Ordinary session of IBC (hearing on religious and spiritual perspectives) • August 2004 • 5. Written consultation on the Third Outline: 75 contributions received • October – December 2004 • 6. Joint session IGBC and IBC: approval text IBC • January 2005

  10. Phase 3: Finalization * February 2005: Official communication of the preliminary draft * 4-6 April 2005: 1th meeting of a committee of governmental experts * 12-28 April 2005: 171st session of Executive Board * May – June 2005: Informal consultations * 20-24 June 2005: 2nd meeting of a committee of governmental experts * 12-30 September 2005: 172nd session EXB * 19 October 2005: Adoption by 33rd session of General Conference

  11. Universal Declaration on Bioethics and Human Rights • Human dignity and human rights • Benefit and harm • Autonomy and individual responsibility • Consent • Persons without the capacity to consent • Respect for human vulnerability and personal integrity • Privacy and confidentiality • Equality, justice and equity • Non-discrimination and non-stigmatization • Respect for cultural diversity and pluralism • Solidarity and cooperation • Social responsibility and health • Sharing of benefits • Protecting future generations • Protection of the environment, the biosphere and biodiversity Preambule General provisions aims scope Principles Application of the principles Promotion of the declaration Final provisions

  12. Universal Declaration on Bioethics and Human Rights Application of the principles Art. 18: Decision-making and addressing bioethical issues - transparency in decision-making - dialogue and informed public debate Art. 19: Ethics committees Promotion of the Declaration Art. 22: Role of States - take all appropriate measures - encourage establishment of ethics committees Art. 23: Bioethics education, training and information Art. 24: Internation cooperation Art. 25: Follow-up-action by UNESCO

  13. Universal Declaration on Bioethics and Human Rights PROMOTION AND DISSEMINATION • Promotion materials: brochures, folders, website • Translations • Publications: journals, media, newspapers • Book with explanation per article • Book with background materials • Conferences, meetings etc.

  14. Universal Declaration on Bioethics and Human Rights CAPACITY-BUILDING: making it work • Global Ethics Observatory • 2. Ethics Education Programme • 3. Assisting Bioethics Committees

  15. Universal Declaration on Bioethics and Human Rights ELABORATION: explain in more detail • 2006-7: IBC working group on Consent (Articles 6 and 7) • 2006-9: IBC working group on Social Responsibility and Health (Article 14) • 2008: IBC working group on Human Vulnerability and Personal Integrity (Article 8)

  16. ETHICS OF SCIENCE AND TECHNOLOGY Website: www.unesco.org/shs/ethics

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