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Learning objectives. To understand the emotional impact of stroke and death for patients and carers and how to helpTo understand the impact end of life care can have upon the professional . The impact of loss. FeelingsCognitionsBehavioursPhysical sensations. Share your experiences and ideas
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1. End of Life CarePsychological Impact Dr Kristina Stockdale Juhlberg
Clinical Psychologist
Clinical Psychology - Stroke Service
City Hospital
2. Learning objectives To understand the emotional impact of stroke and death for patients and carers and how to help
To understand the impact end of life care can have upon the professional
3. The impact of loss Feelings
Cognitions
Behaviours
Physical sensations
4. Share your experiences and ideas Discuss in small groups:
How can you better help and support your patients and their families to cope with loss and/or bereavement?
5. Some ideas of things we can all do Listen
Be patient
Provide support and encouragement
Try to see things from the patient’s/family’s perspective
Allow the expression of emotions
Have an awareness of local services, so that you can signpost for further/additional support
Remember that it’s sometimes small things that matter most!
6. The importance of looking after staff Working with patients at the end of their lives is difficult
Wanting to ‘make people better’
Little or no training on emotional impact of work
Raises issues of own mortality
Death a ‘taboo’ in our culture
Raises own loss issues
Systems that support staff will result in better patient care
7. Share your experiences and ideas Discuss in small groups:
How can you better support and help your colleagues cope with the end of life care and/or death of a patient?
How can you better help yourself cope with the end of life care and/or death of a patient?
8. Helpful ways of coping (for the organisation) System to recognise that these situations will impact on staff
Allowing time to grieve
Supporting clinical supervision
Encourage case reviews/debriefing
Facilitate peer support
Rituals
Managers knowing their staff well
Recognise specific issues for isolated staff
Good communication
9. To take away with you Based on the things you have learnt and discussed today, think of one thing you would like to do differently from now on
Write down your idea to remind yourself (you don’t have to share it with anyone unless you want to!)
10. Some helpful resources Cruse:
http://www.crusebereavementcare.org.uk/
Death and dying leaflet:
http://media.open2.net/death/death_booklet.pdf
Dealing with loss:
http://www.nhs.uk/Livewell/emotionalhealth/Pages/Dealingwithloss.aspx
Bereavement booklet:
http://www.gp-training.net/pal/mentalhealth/pdf/bereavement.pdf
Griefnet:
http://www.griefnet.org/