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Crowdsourcing Your Diagnosis

Crowdsourcing Your Diagnosis. Sharon Leslie Georgia State University. “My doctor told me my post-surgery pain was normal.” - Mindy. Yes, we do. “The pace of medical research is glacial… If we see a pattern; that could lead somewhere.” -Sergey Brin (Google). What about

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Crowdsourcing Your Diagnosis

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  1. Crowdsourcing Your Diagnosis • Sharon Leslie • Georgia State University

  2. “My doctor told me my post-surgery pain was normal.” - Mindy

  3. Yes, we do.

  4. “The pace of medical research is glacial…If we see a pattern; that could lead somewhere.” -Sergey Brin (Google)

  5. What about librarians?

  6. It’s happening. Period.

  7. Thank you! 1. Eds. Calling all patients. Nat. Biotechnol. 2008;26(9):953. 2. Calabretta N. Consumer-driven, patient-centered health care in the age of electronic information. J Med Libr Assoc. 2002;90(1):32-37. 3. CureTogether. Available at: http://www.changemakers.com/node/88624. Accessed May 2, 2011. 4. Victan H. Emerging Trends in User-Driven Healthcare:  Negotiating Disclosuer in Online Health Community Organizations. In: Biswas R, ed. User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies. 1st ed. IGI Global; 2010:481-498. 5. Bonniface L, Green L. Finding a new kind of knowledge on the HeartNET website. Health Info Libr J. 2007;24 Suppl 1:67-76. 6. West D. Health IT - Brookings Institution. Available at: http://www.brookings.edu/topics/health-it.aspx. Accessed May 2, 2011. 7. Miranda G, Gualtieri F, Coccia P. How the new web generations are changing library and information services. Medical Reference Services Quarterly. 29(2):132-45. 8. Frost JH, Massagli MP, Wicks P, Heywood J. How the Social Web Supports Patient Experimentation with a New Therapy: The demand for patient-controlled and patient-centered informatics. AMIA AnnuSymp Proc. 2008;2008:217-221. 9. National Library of Medicine. Images from the History of Medicine (IHM). Available at: http://www.nlm.nih.gov/hmd/ihm/. Accessed May 5, 2011. 10. PatientsLikeMe. Available at: http://www.patientslikeme.com/home. Accessed May 2, 2011. 11. Fox S. Peer-to-peer Healthcare | Pew Research Center’s Internet & American Life Project. Available at: http://www.pewinternet.org/Reports/2011/P2PHealthcare.aspx. Accessed May 2, 2011. 12. Goetz T. Sergey Brin’s Search for a Parkinson’s Cure | Magazine. 2010. Available at: http://www.wired.com/magazine/2010/06/ff_sergeys_search/. Accessed May 2, 2011. 13. Wicks P, Massagli M, Frost J, et al. Sharing health data for better outcomes on PatientsLikeMe. J. Med. Internet Res. 2010;12(2):e19. 14. Lasica J. Social media: opportunities for pharma. Available at: http://www.slideshare.net/jdlasica/social-media-opportunities-for-pharma. Accessed May 3, 2011. 15. Frost JH, Massagli MP. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another’s data. J. Med. Internet Res. 2008;10(3):e15. 16. Anon. Society for Participatory Medicine. Available at: http://participatorymedicine.org/about/. Accessed May 5, 2011. 17. Brownstein CA, Brownstein JS, Williams DS 3rd, Wicks P, Heywood JA. The power of social networking in medicine. Nat. Biotechnol. 2009;27(10):888-890. 18. Fox S. What Really Works in Mobile Health | Pew Research Center’s Internet & American Life Project. Available at: http://www.pewinternet.org/Presentations/2011/May/Mobile-Health-2011.aspx. Accessed May 9, 2011.

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