Community Engagement

1. Community Engagement Nancy M. Bennett, MD, MS Professor of Medicine and Community and Preventive Medicine Director, Center for Community Health

2. Community Health Mission To join forces with the Rochester community to eliminate disparities and improve health through research, education and service, and to establish a national model of community engagement.

3. Key Functions • Novel Clinical and Translational Methods • Pilot and Collaborative Studies • Biomedical Informatics • Design, Biostatistics and Ethics • Regulatory Knowledge and Support • Participant and Clinical Interactions • Translational Technologies and Resources • Education, Training and Career Development • Upstate NY Translational Research Network • Community Engagement

4. Translational Research T1 T2

5. Full model - translation Bench Clinical application Bedside Practice – general use Community / public health

6. Community EngagementValues • Support participatory clinical and translational research • Facilitate genuine partnerships between investigators, providers and community members • Ensure a bidirectional continuum from bench to community

7. Community Engagement • Promote community participation in research • Promote provider participation in research • Improve community engagement capacity of investigators and students • Increase recruitment and retention

8. AIM 1:Promote community participation in research • Center for Community Health - portal • Community Health Faculty Group • Community Advisory Board • African American Health Coalition • Latino Health Coalition • Health Association Collaborative • Health Action Steering Committee • Private practices; community health centers • Key informant interviews and focus groups • Community liaisons • Needs assessment: public, providers, investigators • Health improvement; practice improvement; dissemination

9. AIM 2: Promote provider participation in research • NCRA – Rochester Research Associate Organization • Greater Rochester PBRN • PROS network / FQ health center network • Surveys, investigator/provider interviews • Provider dominated steering committee • Quality initiatives • Levels of involvement • Education and training related to PBR • Databases of providers, practices and projects

10. AIM 3: Improve capacity of investigators and students • Interviews, focus groups with clinical research coordinators and investigators; needs assessment • Training includes didactic, experiential, distance learning, mentoring, teamwork Community based participatory research course • Principles of community health assessment, improvement and collaboration • Theories of organizational and behavioral change • Cultural competency NCRA/RRAO training: assessment and development

11. AIM 4: Increase recruitment and retention • Key informant interviews and focus groups • Establish measures of recruitment / diversity • Communications plan – grassroots public education • Centralized consultation/marketing for recruitment • Annotated bibliography of evidence-based recruitment/retention strategies • Users Group of faculty / research coordinators • Clinical Research Database – searchable • Clinical and Translational Science Building – community resource center

12. Challenges • Community engagement integration in CTSI • Breadth of influence • Persuasion vs. regulation • Principles of community engagement • Community engagement investigator training • Recruitment strategies • Roles of Community Advisory Board and other partners • Participatory research