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Beginning with the end in mind: active user involvement in the research process

Beginning with the end in mind: active user involvement in the research process. Sarah Buckland Director INVOLVE sbuckland@invo.org.uk www.invo.org.uk. JSWEC Cambridge, July 2008. Plan for the workshop INVOLVE Why public involvement is important

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Beginning with the end in mind: active user involvement in the research process

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  1. Beginning with the end in mind: active user involvement in the research process Sarah Buckland Director INVOLVE sbuckland@invo.org.uk www.invo.org.uk JSWEC Cambridge, July 2008

  2. Plan for the workshop • INVOLVE • Why public involvement is important • How people are getting involved in research • Your experiences of involvement • Challenges for involvement • Overcoming challenges JSWEC Cambridge, July 2008

  3. INVOLVE National advisory group. Funded by the Department of Health, since 1996 Promotes active involvement of the public in NHS, public health and social care research JSWEC Cambridge, July 2008

  4. What do we mean by active involvement in the research process? • Public - eg service users, carers, patients • Research carried out ‘with’ or ‘by’ the public rather than ‘to’, ‘about’ or ‘for’ • Consultation – Collaboration – User controlled JSWEC Cambridge, July 2008

  5. Role of INVOLVE • Influencing policy and practice • Increasing awareness and sharing • experiences of others • - website • - newsletters • - databases • Giving advice and guidance • - publications • - enquiries • Improving understanding of extent, nature and effects of involvement

  6. Value of public involvement • Influencing practice • Improving relevance of research • Improving quality of research • design, methods and findings • Assisting in dissemination of • research JSWEC Cambridge, July 2008

  7. researchcycle IDENTIFYING & PRIORITISING TOPICS COMMISSIONING MONITORING & EVALUATION DESIGNING & MANAGING IMPLEMENTATION UNDERTAKING RESEARCH DISSEMINATION ANALYSING & INTERPRETING INVOLVENovember 2004

  8. Experiences of involvement • As a researcher involving service users in your work • As a service user or carer getting involved in research JSWEC Cambridge, July 2008

  9. What are the challenges for public involvement in research • For researchers involving the public • For service users and carers getting involved in research JSWEC Cambridge, July 2008

  10. Overcoming the challenges to involvement JSWEC Cambridge, July 2008

  11. Sarah Buckland Director INVOLVE sbuckland@invo.org.uk www.invo.org.uk 02380 651088

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