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NCHS Research Data Center

NCHS Research Data Center. Wilbur C. Hadden. What is the Research Data Center?. A NCHS data access program An office, with staff, within NCHS A physical space, with security A research facility, with computers. Access to NCHS Data. Public use data files Restricted access Tabulations

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NCHS Research Data Center

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  1. NCHS Research Data Center Wilbur C. Hadden

  2. What is the Research Data Center? • A NCHS data access program • An office, with staff, within NCHS • A physical space, with security • A research facility, with computers

  3. Access to NCHS Data • Public use data files • Restricted access • Tabulations • Reports, publications, web-site • Journal articles

  4. Authority for Confidentiality • Public Health Service Act, section 308(d) • Informed consent of survey participants and data providers

  5. Identified Data • Data records are identified by unique data elements • Name • Social Security Number • Hospital ID number

  6. Identifiable Data • Data are made identifiable with data elements that can be related to unique identifiers • Address • Size – e.g. number of beds, height • Specialization – e.g. having a level 1 shock trauma center, or being a farm owner/manager

  7. Statistical Disclosure • When information on data providers can be inferred from published data

  8. Data Accessible in RDC • Data that are potentially identifiable • Physician age and sex in NAMCS • Data linked to geographic identifiers • State, county, Census tract • Data linked to provider characteristics • Hospital size

  9. RDC Data Access Methods • On-site access • Remote access • RDC staff assistance / collaboration

  10. Data Preparation • Users cannot take data into RDC • RDC staff prepare data files for users • Users can provide data to RDC staff • NCHS policy is not to release user data to others • RDC staff will link user data to NCHS data

  11. On-Site Access • Controlled access facility • Isolated computer network • No e-mail • No internet • No mountable media on computers • Users cannot take materials into computer room • No more than 3 users per project

  12. Output Disclosure Review • Only printer is located behind locked door • RDC staff person retrieves output • Disclosure review performed before output given to users

  13. Remote Access • Send SAS programs to RDC by e-mail • SAS program scanned – a few SAS commands and not allowed • Program executed • Automated disclosure review of program output • Output returned by e-mail

  14. Software in RDC • SAS (only language available on ANDRE) • SUDAAN • Fortran • HLM • Stata • Limdep • text editors/viewers

  15. To Gain Access to NCHS RDC • Visit the RDC (optional, but suggested) • Discuss proposal with RDC staff • Submit research proposal • Discuss proposal with RDC staff and revise • Pass NCHS review of proposal • Sign “Research Affidavit of Confidentiality”

  16. Proposal Contents • Identification of researcher(s) • Source of funding • Description of proposed research • Detailed specification of data sought • Detailed specification of any user supplied data • Software requirements

  17. Proposal Evaluation Criteria • Risk of disclosure of confidential data • Scientific merit and technical feasibility • Availability of resources in RDC • Consistency with NCHS mission

  18. Cost per Project

  19. Number of RDC Clients *January to July 2002

  20. Jobs Processed at RDC *January to July 2002

  21. Projects by Data System

  22. http://www.cdc.gov/nchs/r&d/rdc.htm

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