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Researching Recovery – User Involvement in Data Analysis. Martina Kilbride and Liz Pitt Bolton Salford and Trafford Mental Health Trust. Background. How we came to be involved in research Experience of psychosis Experience of using services Little research experience. Collaborators.
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Researching Recovery – User Involvement in Data Analysis Martina Kilbride and Liz Pitt Bolton Salford and Trafford Mental Health Trust
Background • How we came to be involved in research • Experience of psychosis • Experience of using services • Little research experience
Collaborators • Dr Tony Morrison • Dr Sarah Nothard • Steering Committee members
Overview • Aim • User Led Research • Research Methods • The Role of the Steering Committee • User Researchers and Data Analysis • Steering Committee and Data Analysis • Participants and Data Analysis • Gains from User Involvement in Data Analysis • Plans for the Future
Aim • To carry out a piece of user led research looking at recovery from psychosis from a user perspective
User Led Research • Service Users are Researchers • Establish Steering Committee • Decisions on topic, design and analysis
Research Methods • Qualitative Research • 7 semi-structured interviews • Use Interpretative Phenomenological Analysis (IPA)
The Role of the Steering Committee • Recruiting the Steering Committee • Deciding the topic • Designing the research • Analysing the data • Disseminating the findings
User Researchers and Data Analysis • Familiarisation with IPA • Implementing the IPA process • Agreeing the initial themes • Identifying data to support the themes
Steering Committee and Data Analysis • Outlining the IPA process • Circulating the data and themes • Input on data and themes • Agreeing final themes • Circulating final themes for feedback
Participants and Data Analysis • Circulating the transcripts • Circulating the final themes • Invitation to attend end of project meeting
Gains of User Involvement in Data Analysis • Benefits for Research • Benefits for Users • Model for Other Projects
Plans for the Future • New Research Project • Another IPA Workshop • More time for Steering Committee input • More involvement of participants • User led Research Workshop